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Aching legs from Small Fiber Neuropathy

Neuropathy | Last Active: Dec 1, 2023 | Replies (140)

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@jimhd

I'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to California while I was in college. I have esophageal dysmotility and silent reflux and whatever. I chew everything endlessly until it's pureed. The little bite of food makes its way to the top of my esophagus, then it moseys on down to the bottom of the esophagus and waits for the valve to open and allow the food to get to my stomach. Right now I'm eating pancakes in a restaurant. I don't want to know how many calories of syrup I've used to make it easier to swallow. My poor wife, who isn't with me, finishes her meal when I'm only half way. Usually she plays games on her tablet while I finish the chore of swallowing. I find that I am eating less because I get tired of the process. That's something the speech therapist warmed me of, and told me not to lose any more weight. Recently swallowing liquid has become an issue. Not supposed to drink carbonated drinks or use a straw.

I'm done with chewing now, so I'm going to head home.

Happy Chewing!

Jim

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Replies to "I'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to..."

@jimhd I read your post àbout swollowing There isva thick liquid you can take that helps I can't think of the name of it but perhaps @becsbuddy can remember it

@jimhd Hi, Jim, @lioness asked me to jump in here. When you say that swallowing liquids is a problem, do you mean those with a regular consistency? I had the same problem when I was first diagnosed. It was suggested that I use a product called Thick-it. You add it to your drink to thicken it and it’s tasteless. Not sure if that info helps, but....Becky

@jimhd It seems to me your symptoms are similar to my GI problem... that is, gastroparesis.. the stomach empties much slower than normal.. sauces with everything helps ... eat small amounts frequently, never carbonated drinks, Never a straw...too much air is swallowed ...chew chew chew... snacks to get calories.. nuts and berries.. trail mix.. with mixed nuts... doughy stuff like pancakes and soft breads are toooo pasty .. and form a ball down there that is difficult to pass on out of the stomach... bloating... terrible... Do you have that?
Mayo diagnosed mine with 3 tests... just takes the better part of a day.. Ken

Jim; I hope this is not where I’m headed they say my esophagus has slowed down, & to really chew my food! I’ll be at the other table doing the same thing ha ha