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Aching legs from Small Fiber Neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (140)Comment receiving replies
May I ask anyone out there...if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.
Also, and I believe @jimhd suffers from this...my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.
My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.
Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.
Replies to "May I ask anyone out there...if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness?..."
I'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to California while I was in college. I have esophageal dysmotility and silent reflux and whatever. I chew everything endlessly until it's pureed. The little bite of food makes its way to the top of my esophagus, then it moseys on down to the bottom of the esophagus and waits for the valve to open and allow the food to get to my stomach. Right now I'm eating pancakes in a restaurant. I don't want to know how many calories of syrup I've used to make it easier to swallow. My poor wife, who isn't with me, finishes her meal when I'm only half way. Usually she plays games on her tablet while I finish the chore of swallowing. I find that I am eating less because I get tired of the process. That's something the speech therapist warmed me of, and told me not to lose any more weight. Recently swallowing liquid has become an issue. Not supposed to drink carbonated drinks or use a straw.
I'm done with chewing now, so I'm going to head home.
Happy Chewing!
Jim
@awinney Hi again, Rachel, I do have a problem with heat, every single morning when I wake up. My entire legs feel like they are on fire. As soon as I start moving out of bed, it disappears. While it happens, it feels horrible. I have also had 2 strange episodes of esophagus problems when eating. Each time, I almost felt like I had a kink in my esophagus, and could not get my food down. I felt like I had to stand tall, to unkink my esophagus, and of course, stopped eating completely. I have a history of esophageal reflux that started as a reaction to meds. I really have any answers to these temperature and esophagus problems, because I never pursued answers. Don't know if this is too smart, or not. Just get so tired of physical health problems. Yeesh!!!! Lori R
@rwinney, Your new "trick" has been around my neighborhood for more than a year. It started when I flew home to CA right before the big fire last summer. My granddaughter drove me up the mountain.
Shortly after we arrived, we got the notice to evacuate. We were just finishing our breakfast at the Plant Food Supper Club (cool place). I was pretty anxious and that is when it started...could not swallow and I panicked because of the discomfort. My granddaughter told me not to talk so much and it would get better because I was sucking air too fast........and I think she was right. Evidently I was taking in too much air because of the anxiety. Now I know how to stop the esophageal swallowing issue. If I have problems, a few moments of MFR (myofascial release therapy) will calm everything down. My MFR therapist told me it is not an uncommon problem. First step to try is meditation. Just ramp everything down.....
Be at ease with your body. Chris
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This might indeed be a good new thread, @rwinney, on the subject of swallowing discomfort and pain, if you'd be willing to start it.