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Rachel, Volunteer Mentor (@rwinney)

Aching legs from Small Fiber Neuropathy

Neuropathy | Last Active: Aug 28, 2021 | Replies (134)

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@rwinney

Hello and thank you for your kind words Lori Renee. Today is a better day…feeling stronger and PT went well. I will keep going and focus on legs. I have heard of tapping. Tried it for migraines but no such luck. I may not be patient enough.

I'm thinking hydrocodone is exacerbating my pain. Maybe thats why I have pain in all these places. It's a rotten drug in that way. I'm working towards weaning off after I get a back up plan. Meeting with Pain Management to duscuss Low Dose Naltrexone then getting referred to a prescribing Doctor for medical cannabis so I can learn, then weigh my options. I'm a play it safe girl, if you can't tell. Ha Ha. So, Kratom for me is out at this time.

Definitely sensations like sunburn are nerve induced. I also get vibrations at times and many other oddities…name of the game. However, Lyrica has helped reduce these things. Now I've upped my supplement game and following a protocol so hoping the Alpha Lioic Acid and Acetyl L Carnitine and others take over on helping.

No hydro yet today, fighting it and doing pretty good. Helps that I'm heading to my daughter's college for her for first basketball scrimmage! Can't wait to see her….BEST therapy yet!!!

Have a great day and find relief. Thanks so much for corresponding.

Rachel

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Replies to "Hello and thank you for your kind words Lori Renee. Today is a better day...feeling stronger..."

@rwinney Rachel, I hope you really enjoy your daughter's basketball! I just found out that I am going to have a grand daughter, so I am over the moon. My five year old grandson has wanted a sister for a few years now, so he is crazy excited. I am glad your day was better yesterday. I swear, there is little rhyme or reason, a good part of the time. I am pain free today!!!!! Last night, I took a walloping dose of CBD and salves to try to control God awful pain. In two hours, I could be in pain again. I cherish the pain free times. They are few. I hope you figure out your medications, and I do not blame you for not wanting to try Kratom. I just can't find anything that works as well! I still think it is good that you have information about it, cause ya never know. Let me know how your meds work out, keep up with the leg exercises regularly, if only for a bit each day. Being pain warriors is nothing we ever signed up for, that's for sure!!!! Maybe the protocol you are doing will help. You help so many people! You deserve to feel better yourself!!! God Bless you……. Lori Renee

@rwinney how much lyrica are you on. How long did it take to feel it’s effects ? Any side effects?