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Rachel, Volunteer Mentor (@rwinney)

Aching legs from Small Fiber Neuropathy

Neuropathy | Last Active: Aug 28, 2021 | Replies (134)

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@rwinney

Hey there, I'm going back to my physical therapist tomorrow actually after taking a month off. He does myofacial release on various areas of my body. Tough to keep going because of co-pay costs and limited insurance approvals. My pain is not isolated to one area therefore he has to rotate body parts and I don't think each area gets the attention it deserves.

Tomorrow, I'm going to specifically talk with him about the aching in my legs and the cramping/numbness that flushes down them.

The sun burn feeling is so bizarre isn't it?

Yes, I agree there is fear with Kratom. I'm happy it brings you relief and was wondering if a Dr ever recommended it for off label use to you? Due to safety concerns, lack of studies and no FDA approval it remains a big risk. Curious how long you have been using it?

Thanks for your listening ears and big heart. It sure does help. Glad to know we can be here for each other. Take care

Rachel

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Replies to "Hey there, I'm going back to my physical therapist tomorrow actually after taking a month off...."

@arwinney Hi Rachel, I am so glad you are going to PT! I guess for now, you must concentrate on your legs. I understand how costly PT can be. I could not even go, with the Co pays on my new insurance plan. Finally on Medicare. What can I say? Did you ever ask anyone about the sunburn sensations you get? I never have, but just marvel at them. Bizarre is right!!!! I also used to get sensations of water dripping down my legs. All crazy nerves, acting up. As far as the Kratom; I learned about Kratom at least one year ago or so, from a lady on this site. She said that since she started using it, her pain has been very manageable. I did all kinds of research on it, and decided to give it a try. Kratom deaths, of which there really are few, were young adults, always with other drugs in their system. Although it is not FDA regulated, there are scientists doing a lot of research on it. Also, I get it from two on line sites, one of which, has to pass Kratom Association standards. It is third party tested for anything that does not belong in it, and whatever else the Association standards are. The on line site is called Happy Hippo. I like the other site very much, but I do not think it does third party testing. The biggest thing to learn about kratom and safety, is to take the least amount you can, to get the desired effect. For me, this is about two to three teaspoons per dosage. I add it to about three ounces of water, and chug it down. I swear, Rachel, it takes pain away quickly. Another thing, is to really save it for when pain is very, very bad. I have heard it can be addictive, so I use it sparingly. No more than about twice a week. Used it yesterday because my toes felt like they were being pulled out of their sockets, and pain would not go away. I can "tap" pain away, sometimes. Do you know about tapping? It works quite often. Check out tapping for pain, on you tube. Looks mighty goofy, but works! And Rachel, you have a giant heart. You put your soul into every post. I can feel your kindness through your words. Anyway, best of luck at your Physical therapy. Nerve damage is one horrid thing. Prayers to you, Lori Renee