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Rachel, Volunteer Mentor (@rwinney)

Aching legs from Small Fiber Neuropathy

Neuropathy | Last Active: Aug 28, 2021 | Replies (134)

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@rwinney

Hello

You are spot on with the confusion factor and not knowing what's from what. I read it's important to not assume everything is from PN however, there's such a fine line.

You said the word job.
I went on disability from my job 2 years ago yet I still feel like I work, without getting paid, on my health and figuring this stuff out!

Back to the legs…I understand how you say you cant wear jeans. Some days I can not wear certain fabrics or clothes that fit to snug on my legs and arms, as I haven neuropathy there too. Days when I cant wear sneakers or have one tied, or have a sock on. Days when the sheet can't touch my calves.
It's really mind boggling.

My random neuropathy pains vary day to day. Has been toe, top of foot, ankles, calves, shins, knees, hip, thigh, shoulder blades, neck, back of head, jaw, fingers, top of hands, forearms, low back…hmmm, maybe easier to say whole body but not quite yet. It's freakin' crazy to be honest and some days makes me think Im crazy!
Thankfully I have a skin biopsy to prove my sanity.

Keep me posted on your discoveries and whether you clarify any of your confusions. It's the best thing we can do to help one another. Good luck to you with your upciming surgery. I wish you the best. Take care.

Rachel

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Replies to "Hello You are spot on with the confusion factor and not knowing what's from what. I..."

Hi Rachel
I did find one paper on the relationship of PN and arthritis.
I don't think I'm allowed to write hyperlinks on the forum, so here is the name:
"Peripheral Nerve Fibers and Their Neurotransmitters
in Osteoarthritis Pathology"
I think you'll find it if you google the name. It's a bit dense.
I think I'll forward it to my neurologist, see what he thinks.
It sort of doesn't matter, since they can't do anything about it.
I'd be interested in hearing from anyone else reading this if they have noticed rapid deterioration of osteoarthritis.
Thanks for the kind thoughts.
Jeff