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Autoimmune encephalopathy anyone?

Autoimmune Diseases | Last Active: Feb 9, 2022 | Replies (55)
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@becsbuddy

I also had a difficult time getting diagnosed @tanap1 . I’m glad you’re seeing an neurologist immunologist. They knew right away what was going on with me. Take good articles with you and advocate for yourself! Go to a university medical center, if you can. Please let me know how things turn out for you

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Replies to "I also had a difficult time getting diagnosed @tanap1 . I’m glad you’re seeing an neurologist..."
tanap1 | @tanap1 | Oct 28, 2019

Thank you so much, Becky! I am glad you have finally received a diagnosis and hope you are getting helpful treatment. I actually am going through a university medical center. I have found the most help by going to Dr.s within the same network. At least, within the same network, each Dr has access to information from other Dr.s. They may not all agree with each other but is seems to lessen multiple repeat testing and things of that nature. In my situation, it seems the process of elimination is a huge part of finding a diagnosis. I am trying to remain hopeful the neuro immunologist will have some answers for me.

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american | @american | Oct 28, 2019

Never heard of neurologist immunologist. How do you find one? I'm in Los Angeles California and on Medicare HMO.

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