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I am curious to know other’s stories of post viral neuropathy.
Neuropathy | Last Active: Aug 8, 2022 | Replies (62)Comment receiving replies
Thank you, Hank. Yes, I spent most of my life in Los Angeles - Santa Barbara was a 2-hour scenic drive up the coast. Several things happened that propelled us out of California in 2010 (I miss it still). We spent a couple of years around Las Vegas, then followed daughter to Washington DC, living in a Virginia Suburb. I didn't like Virginia, kept visiting the beaches from Atlantic City to Outer Banks. We settled on Bethany Beach as our favorite, retired and moved here about 2 years ago. I love it here, I run on the beach every day no matter what the weather, and have made friends. There is an acute shortage of doctors here, but since Covid-19 became epidemic, doctors have been tele-conferencing so I'm zooming with some of my favorite old doctors wherever they are. I'm advising them all to come to Delaware.
Where are you ? Anyone who wants to share such information as where you are and if there are good doctors there would be doing the rest of us a favor should we want to move. Recently, friends here pointed out that Johns Hopkins is only a few hours away and they might be interested in Neuropathy (Mayo told me that they have so many of us that all the appointments and even the waiting list are full).
Peggy
Replies to "Thank you, Hank. Yes, I spent most of my life in Los Angeles - Santa Barbara..."
Just for added info, I went to Johns Hopkins for my short fiber neuropathy. I have burning pain in feet, legs, hands, and arms caused by a cervical steroid injection. I saw Dr. Koshnoodie. They did leg biopsy and EMG, which showed short fiber neuropathy, but did nothing after that. I thought they would have a team of doctors to try to figure out what was wrong, but no. They didn't even refer me to their pain management department. I am not saying you shouldn't try them, but I just wanted to share my experience. I am glad you like Bethany Beach. I went to high school in Lewes Delaware, and we now have a summer house in Dewey Beach.
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@pfbacon Peggy, it's surprising to hear about some who travel quite a bit while dealing with so much pain from neuropathy. My wife suffers every day with her pain and whatever energy she gets in a day is usually used up by the coping. We have traveled to see family since she had PN, and the last time was Feb. '19 and now she has gotten worse the past year and there seems like no way she would be able to make the drive (can't fly due to lymphedema) to New England from Nashville.
So you live at Bethany Beach. I believe I mentioned some weeks ago to you that my family went there when I was a kid as we would visit my grandparents in Millsboro (15 miles from Bethany) most summers. Some of my very fondest memories of childhood. I too am a beach lover. Best to you, Hank