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I am curious to know other’s stories of post viral neuropathy.
Neuropathy | Last Active: Aug 8, 2022 | Replies (62)Comment receiving replies
Good afternoon @curtj, Welcome to Connect. We are a community of patients, parents, providers, and caretakers, not medically trained but very experienced in what has happened in our bodies and what steps we have taken to move on from the diagnosed illness or condition. It appears that you are exploring information for your wife as written by another member, @cindy62 who had opened a discussion in October 2019. It is likely that @cindy62 is not active at this time. If you would like to find information neuropathy information go directly to:
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
You will find a post on the right-hand side of the heading. It will say Oldest......followed by Newest. So for the latest posts tap Newest. You will also find more than 100 different Discussions in the Neuropathy group listed when you click on Discussions. It might be best to go through them and see if any other discussions connect with your question.
What exactly is causing your wife the most serious symptom that is concerning you? I realize the dismay you must feel at not even getting a diagnosis. I think you might find help on Connect by using the search tool at the top right directly to the left of your photo. Type your keyword in the box and press the magnifying glass. Take a look.
I will be waiting for you to fill me in a bit more and then while you are searching the discussions, I can see just who might be lurking in the wings with a very similar journey and a happy outcome.
May you and your wife be free of suffering and the causes of suffering.
Chris
Replies to "Good afternoon @curtj, Welcome to Connect. We are a community of patients, parents, providers, and caretakers,..."
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Thank you Chris!
For the last four months, she has suffered with a very intense, burning pain that started in her neck. It became systemic as it traveled to her mouth, throat and tongue with burning, tingling sensatons that were unbearable. It traveled throughout her body to her chest, arms etc. She practically lived on ice packs for three months. This all started in early March after a trip to Florida and she caught a bad respiratory cold. She was tested for covid (negative) and for the antibody to see if it was present. (also negative) She is ultra sensitive to medicine and had been on Gabapetin (had a reaction to it)at a low dose of 600 mg/day. They wanted to increase it but she was having more pain. She was on Tramidol and has since come off as well as Lyrica. Lyrica is only 25 mg/day down from 50 mg. She reduced it per her pain Doctor two days ago and now is in extreme pain but are told that the dose was too low to have side effects. She did have a three plus week of reprieve that ended two days ago. She has so many tests and no real diagnosis or prognosis for what she will be dealing with. Her heart rate and BP is high and this afternoon made a trip to Urgent care as a result. She had two episodes of Sinus Tachycardia while at Urgent Care. All they said is get her to a hospital if it happens again. (She has been treated for Ectopic Atrial Tachycardia) Short of getting on a plane and heading out to Rochester, we are at a loss for what to do next...