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Entyvio and hair loss

Digestive Health | Last Active: Mar 15, 2023 | Replies (41)

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@sandyjr

As you can see from former posts, I do know about hair loss with entyvio. I can’t give you an exact timeline, but I can give you hope. According to my former info, she had Crohn’s surgery at the end of August 2019. Her hair started coming out in September. She continued with the entivyo infusions until January or February of this year I think. Unfortunately she had lost all but a few strands of hair. It broke my heart. Her hair started coming back probably sometime in the spring and is now fully back. I think she has gotten it cut at least a couple of times as it needed shaping. Her hair is growing like weeds now. The person that cut her hair told her to take prenatal vitamins and use hair conditioner that does not rinse out. She had beautiful hair down to her waist when this started and now it is touching her shoulders. I don’t know where you live, but the timing for her was just right. We live in NJ, so wearing knit hats during the winter worked and she wore ball caps in the spring when it was coming back in. Her doctor also did not know that entyvio caused hair loss. The drug company should tell people...maybe they know people will not want to take it if they know. There is light at the end of the tunnel. I think you will be fine. Take care.

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Replies to "As you can see from former posts, I do know about hair loss with entyvio. I..."

Hi. So initially when your daughter started the Entyvio she had all the hair loss BUT after the initial time frame was over, her hair came back WHILE she continued using Entyvio? I apologize if I am getting the facts wrong with your daughter!! Praise God her hair came back!!!! It’s very humbling to be a woman with hair loss. Sorry. That’s my vanity talking. 😮🙏😚🙄