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Entyvio and hair loss

Digestive Health | Last Active: Mar 15, 2023 | Replies (41)

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@sandyjr

My daughter had a bad Crohn’s flare last year. She had surgery in August which has helped with the gastric pain, but her hair is falling out by the handfuls now. Since this may be related to her medicines, has anyone heard of or tried the cooling cap that chemo patients are using to prevent hair loss?

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Replies to "My daughter had a bad Crohn’s flare last year. She had surgery in August which has..."

Here is a story about the cooling caps for anyone who may be unfamiliar with what @sandyjr is discussing, https://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-cold-cap-therapy-preserves-patients-hair-and-positive-attitude/. This story talks about the cap being worn 30 minutes prior to chemotherapy treatment, during treatment, and for a few hours after treatment. You may also noticed I combined this discussion with your previous discussion on Entyvio and hair loss so members have a chance to Connect within this discussion.

@sandyjr, are you wondering if a cooling cap is available for in-home use or for use while a patient is being treated with Crohn's medications? To build on what Ethan discussed, have you, or your daughter, discussed the side-effect of hair loss with the medications with the provider? Do they expect this to be short-term?