HI emcg
I have been diagnosed with Small Fiber Peripheral Neuropathy. I am also at times angry, worried, and disappointed, etc. It's natural.
From the information you provided, I can only guess about the medical aspects of what you describe.
It sounds like you found a neurologist you like. He or she should be able to proceed in a step wise manner to try to come to an accurate diagnosis.
Usually, this involves first taking a complete history and physical, then doing certain lab tests based on that. The results of those tests often lead to others. Finally, if indicated, tests such as nerve studies (called an EMG/NCS), skin biopsy, and perhaps others. They are generally not all done at once.
The goal is to make a diagnosis, then try to find a cause, which can be treated medically. Unfortunately, as with me, this doesn't always happen, in which case it's called idiopathic (unknown cause). What's left is to treat the symptoms.
It sounds to me like you're in the very beginning of this process, and don't yet have a diagnosis.
Peripheral neuropathy, if that is what you have, is a very frustrating disease for the patient, and often the doctor. The symptoms vary from day to day, and unfortunately, the medical treatments are not always very good. That means you have to become sort of a treatment sleuth, trying different things, such as some of those mentioned in this forum, and others. Eventually, you will find something(s) that help. Also, at your age, I bet research will find a treatment and/or cure eventually.
Try not to project too much into the future. Worry and anxiety will make it worse. If you find yourself suffering with these emotions, talk to your doctor. There are many things, including traditional and alternative treatments, that can be done to help with negative emotions.
You are doing all the right things so far, such as exercise. I am 74 years old, and can still ride my bike, sometimes 30 miles a day, making adjustments for my burning feet. Riding keeps me fit, and makes me feel good about myself.
You have a young family, which is both a blessing and an obligation.
If you'd like to private message me for advice and what my experience has been, please do so. I am a retired ER doc, and these days, unfortunately, somewhat of an expert in peripheral neuropathy.
Good luck.
Jeff