Controlling the Anger and Sadness: My Neuropathy is Overtaking Me

Posted by lorirenee1 @lorirenee1, Oct 18, 2019

One of those days today where feet are just throbbing, can't find shoes to wear, can't be without shoes, loaded up on CBD, and finally not in so much pain. Just have real sleepiness from CBD. Now folks: Is this a way to live??????? How? I am such a healthy lady without this neuropathy. But it has overtaken me. Punch drunk on CBD. So messed up. I hate this. Crying. Don't know if I will ever really learn a coping strategy, deep down. How do we do this every day? This pain warrior is exhausted. Lori Renee

Interested in more discussions like this? Go to the Neuropathy Support Group.

lorirenee1 | @lorirenee1 | Oct 19, 2019

In reply to @rwinney "Sounds like a good plan. Take care." + (show)

@rwinney Thanks so much! If ever ya wanna just talk, let me know. God bless. Lori R.

lorirenee1 | @lorirenee1 | Oct 19, 2019

@artscaping Thanks for writing, Chris! Don't know much about academy awards, but I wrote what was in my heart. Have had neuropathy for about a year and a half, and it seems like I am just coming to terms with it, and that it will never go away. Find myself crying, out of the blue. As far as barometric pressure, I do not notice an effect at all. My CBD sometimes does feel like maybe there is too much THC in it, but I rather like that, usually. However yesterday, it made me feel messed up. All so complex. Maybe mood has something to do with it. My CBD is supposed to have .03% or less, THC. But sometimes I swear, I feel a bit high. Usually, I love my CBD, and buy a 2500mg. bottle. By the way, Chris, I can tell you love words. I do too. You write with great sensitivity and clarity. I love that. Just hearing you has helped me. I am better today, and your words have warmed me. God Bless. Lori R.

Rachel, Volunteer Mentor | @rwinney | Oct 19, 2019

In reply to @lorirenee1 "@rwinney Thanks so much! If ever ya wanna just talk, let me know. God bless. Lori..." + (show)

Thank you. I really appreciate that.

cathylc58 | @cathylc58 | Oct 22, 2019

Lori, I know how you feel. Right now I'm so depressed, about my neuropathy, I just don't know what to do anymore. I just want to give up and say, okay, neuropathy, take me now!! And the pain! Just a couple hours ago I was diagnosed with laryngeal sensory neuropathy. A month sgo, I was diagnosed with neuropathy in my bladder, so I have a folley catheter. I also have neuropathy in both my small and large intestines, feet, skin, and it's starting on my legs, and in my fingers. I'm sorry I'm no help. I just want to say, I'm right there with you. God Bless you Lori.

lorirenee1 | @lorirenee1 | Oct 22, 2019

In reply to @cathylc58 "Lori, I know how you feel. Right now I'm so depressed, about my neuropathy, I just..." + (show)

@cathylc58 God bless you, as well, Cathy. I just do not know what to say to you. Such a painful illness. Have you heard of Kratom? It is a leaf from SE Asian trees, that helps for pain. I feel it works better than anything, and I have tried EVERYTHING. Please let me know if you want more information about it. I did not even know neuropathy could hit as many places as you have it. Do you get rid of the catheter in time? Get back to me. I just feel awful for both of us. Lori

harley22 | @harley22 | Oct 23, 2019

I feel for you, as I have similar symptoms and been dealing with them for 7 years now.
It’s as if every part of my body is involved some way or the other.
It started in my feet and now it’s in my right hand, my lips are also numb, and I too have no sensation in my pelvic area.
To be awakened in bed with nerve pain and tingling in my feet is sometimes too much to deal with.
The other mornings no it felt as if someone was ripping my calf apart.
I usually take Ibuprofen round the clock along with Gabapentin, and I’ve just been diagnosed with CIDP, and had my first round of IVIG infusions.
I was fine after day 4 of the infusions but on day 5 and 6 all hell broke loose.
I was so dizzy, couldn’t even walk straight. Felt awful, both my hands had tingling in fingers,couldn’t hold anything.
Today I’m better, but honestly it just gets overwhelming, don’t know how much more I can take.
Would like to have just 1 day free from all this garbage!

harley22 | @harley22 | Oct 23, 2019

I’m with you, been suffering now for 7 years.
My quality of life stinks, can’t do much, broke my right foot 3 times in a year,had multiple surgeries too.
If only was my foot to deal with,I might deal better, but this neuropathy is overtaking my whole body.
There are days where I too, feel hopeless, and just have enough.

lorirenee1 | @lorirenee1 | Oct 23, 2019

In reply to @harley22 "I feel for you, as I have similar symptoms and been dealing with them for 7..." + (show)

@harley22 God bless the empathy you have shown me. That helps so much. The people around me don't see that I look different, and don't check on me much. I also don't want to be burdensome. It is not easy. What is CIDP? I do not know what it stands for, but it must be intense for you to take infusions for it. Has the reason for your neuropathy ever been found? Your pain is agonizing, and I know how that is. I stopped the Gabapentin, because it did nothing helpful for me. Do take care as best you can. I have told people about Kratom. I take it, and it does relieve pain. If you want to know more, let me know. God Bless. Lori Renee

Rachel, Volunteer Mentor | @rwinney | Oct 23, 2019

In reply to @harley22 "I’m with you, been suffering now for 7 years. My quality of life stinks, can’t do..." + (show)

Funny you mention your foot...
Before I was diagnosed with SFN and didn't know what on earth was wrong with me, I used to wonder why I couldn't have a break or something that was clearly able to be seen and fixed. Well, now I have a diagnosis and still feel that way.