Good morning Lori,
Just read your response and you’re absolutely right, no one wants to be a burden, but on the other hand, no one really knows what you’re going thru, certainly my family and friends.
I’ve been told I don’t look that sick, that’s why no one really gets how hard it is for me.
My poor husband has been my primary caregiver past few years, and I really feel sorry for him.
All he does is drive me to doctor appointments, and he even has to help me shower, even though I’ve started doing this myself,but let me tell u, something that simple is a real chore for me.
CIDP is also known as Chronic Inflammatory demyelinating polyneuropathy.
After 6 neurologists, I finally have a diagnosis. They think it’s an autoimmune thing, destroying the protective nerve coverings surrounding my nerves.
The numbness and nerve pain can be awful at times, so I take Ibuprofen round the clock, along with Gabapentin 3 times a day.
I thought the Gabapentin wasn’t helping much, but one thing it is doing is spacing out the electrical jolting pain I get in my feet and ankles sporadically.
Sometimes I feel like someone is stabbing me or pulling my toes with a pliers.
This morning I woke up with pain and numbness in both legs and feet, which is a horrible way to start the day.
What is Kratom, I know you said it helps you with your pain.
You take care, and I look forward to communicating with you again soon! Marilyn M