← Return to Controlling the Anger and Sadness: My Neuropathy is Overtaking Me

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@harley22

I feel for you, as I have similar symptoms and been dealing with them for 7 years now.
It’s as if every part of my body is involved some way or the other.
It started in my feet and now it’s in my right hand, my lips are also numb, and I too have no sensation in my pelvic area.
To be awakened in bed with nerve pain and tingling in my feet is sometimes too much to deal with.
The other mornings no it felt as if someone was ripping my calf apart.
I usually take Ibuprofen round the clock along with Gabapentin, and I’ve just been diagnosed with CIDP, and had my first round of IVIG infusions.
I was fine after day 4 of the infusions but on day 5 and 6 all hell broke loose.
I was so dizzy, couldn’t even walk straight. Felt awful, both my hands had tingling in fingers,couldn’t hold anything.
Today I’m better, but honestly it just gets overwhelming, don’t know how much more I can take.
Would like to have just 1 day free from all this garbage!

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Replies to "I feel for you, as I have similar symptoms and been dealing with them for 7..."

@harley22 God bless the empathy you have shown me. That helps so much. The people around me don't see that I look different, and don't check on me much. I also don't want to be burdensome. It is not easy. What is CIDP? I do not know what it stands for, but it must be intense for you to take infusions for it. Has the reason for your neuropathy ever been found? Your pain is agonizing, and I know how that is. I stopped the Gabapentin, because it did nothing helpful for me. Do take care as best you can. I have told people about Kratom. I take it, and it does relieve pain. If you want to know more, let me know. God Bless. Lori Renee