Swelling and stiffness, 3 years after total knee replacement

Posted by bengalady @bengalady, Oct 9, 2019

I had knee replacement 3 years ago. It is worse than previous knee pain, and getting worse as more time goes by. My surgeon (in another state) says everything normal based on X-ray. Ortho doc here says the same, and said I’m having pain and he referred me to pain clinic for possible nerve block. I want to know WHY am I having pain, although I didn’t call it pain. ROM is 100. They can’t see everything on X-ray. I want an MRI. Want to go for second opinion. Should I tell new doc I’m there for second opinion, I don’t think that’s necessary......I think that would cause some bias, ie they would just say same thing.
Has this happened to anyone ? Thoughts ?
TIA

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I had right knee replacement surgery 5 weeks ago. After surgery my whole leg including my foot was numb. As I walked around I could not feel anything I was told that it would get better through the weeks everytime that I mentioned this to my doctor. At first his response was during surgery nerves get challenged due to the surgery. Then the second time I was told that if I had back problems that would cause the numbness in the foot, I was getting a manual manipulation of the knee that morning. Is it possible that a nerve could have been cut causing the numb and tingling feeling?

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@monielove

I had right knee replacement surgery 5 weeks ago. After surgery my whole leg including my foot was numb. As I walked around I could not feel anything I was told that it would get better through the weeks everytime that I mentioned this to my doctor. At first his response was during surgery nerves get challenged due to the surgery. Then the second time I was told that if I had back problems that would cause the numbness in the foot, I was getting a manual manipulation of the knee that morning. Is it possible that a nerve could have been cut causing the numb and tingling feeling?

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@monielove I'd like to extend my welcome. Since your knee surgery 5 weeks ago you are experiencing numbness and you are curious if, "a nerve could have been cut [during surgery] causing the numb and tingling feeling?"

You will see that I have moved your question into a discussion in the Joint Replacements group where members are currently discussing knee replacements so you could more quickly connect and get support. You will notice members like @eeppeerr88 @lil1952 @cobweb have experience with this topic and may be a good resource for you. I also encourage you to scroll back through the comments to find previously shared suggestions.

You mention a tingling feeling. Does this mean that there has been some improvement in the numbness since surgery?

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Might be the growth of scar tissue. You need a scan. I got X-rays from hospital and my knees were perfect. Got a scan elsewhere and you could see the amount of scar tissue. It interferes with your movement. But nobody wants to remove it! But at least you will have an answer.

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I had a TKR 5 years ago and five times within the last 7 weeks my knee blows up the size of a 16 inch baseball. I"m on crutches for 2 days and then i can put weight on it.. I went to see the doctor and he had me get a MRI, CAT Scan, and a Ultra Sound After the test results he says everything looks normal. Well that is impossible and i think these so called doctors have no idea whats going on. I"m 5" 10 and weigh 185. So no weight issues. Anyone have any idea as to what might be going on?

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@eeppeerr88

I had a TKR 5 years ago and five times within the last 7 weeks my knee blows up the size of a 16 inch baseball. I"m on crutches for 2 days and then i can put weight on it.. I went to see the doctor and he had me get a MRI, CAT Scan, and a Ultra Sound After the test results he says everything looks normal. Well that is impossible and i think these so called doctors have no idea whats going on. I"m 5" 10 and weigh 185. So no weight issues. Anyone have any idea as to what might be going on?

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Are you seeing your primary or your ortho doc? Did they ever use a needle to extract any fluid for a culture while it was swollen? It sounds like when my Mom had a systemic infection that would "settle" in the fluid near her knee. Or did they do an ESR blood test to check for systemic inflammation?
Sue

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I had TKR 2yrs ago , terrible, then a revision 7 months ago , still swelling below the knee. They tried draining it , nothing. No one seems to have answers other than “ this sometimes happens “. My pain is off the charts with any weight baring Every X-ray or ct scan says nothing wrong. Looks like I am headed for STEMWAVE PNS. You mentioned MRI , I was told that is not reliable after TKR

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eeppeerr88- You are searching for a cause to your implant issues. Did you have allergy testing before selecting your implant? I think you should consider allergy blood testing, if you haven't already for all the components of your implant. Many allergy's develop after years of contact like I did because over time the body believes many natural and chemical elements are a foreign substance that must be eliminated. Since childhood I had environmental allergies to grass, pollen and others. As we age our bodies change, in middle age I began developing allergies to contacts like preservatives, fibers, cortisone, rubber and it's elements, adhesives, fragrances, and most recently metals. I know I am an allergic person yet still had to pay $600.00 out of pocket for blood testing for components in the implant; Medicare doesn't cover allergy testing for implants. Best $600 I ever spent. My surgeon didn't recommend this testing, I insisted out of caution and the result was I canceled my scheduled surgery. I tested positive to 5 metal allergies and even though not allergic to titanium the surgeon told me even the titanium implants have traces of the other metals which I am allergic to. i figured I would be better off dealing with my failing knees than to live with the constant pain and swelling of a rejected implant. I have read of many redoes and rejection issues and cannot understand why orthopedist's don't require allergy testing for the components and also why Medicare would prefer to pay for implants and redo of implants that may be rejected and the blood testing could prevent this.
If a candidate has metal allergies there is a ceramic coated metal implant which my orthopedic surgeon recommended, so I went home and studied on the internet and read in the last few years a class action lawsuit was created and ongoing for this implant, How could my doctor not know? He never mentioned this class action lawsuit. This lawsuit began because the bone cement is not adhering to this implant causing failure. I was tested for bone cement (I have several other adhesive allergies) and was not allergic to it, yet some are. According to the lawsuit the company kept making these implants that could fail even when they were aware of rejection. They have the technology to correct this but didn't want to pay for the improvement and thus admit their implant could fail. I know those of us with allergies are in the minority which the companies and doctors feel acceptable.
I have read that all metal implants have metal deterioration due to wear over time and these particles get into surrounding tissues causing inflammation for most and if allergic the inflammation is pronounced, not only in the surrounding tissue but it metal gets into the bloodstream. The only choice is removal.

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@gardeningjunkie

Could you be allergic to the implant? If allergic I imagine there would be inflamation in the area and do not know if that would show up in an xray.
Why I can't have a knee replacement- My ortho was ready to proceed with my knee replacement this spring but I insisted upon metal allergy and bone cement allergy testing first. He told me he hadn't had issues with rejection, but I am an allergic person and would rather proceed cautiously. I have Allergic Contact Dermatitis, ACD, and Patch Testing showed about 7 allergies out of 80 sites. I have multiple adhesive allergies but was never tested for the adhesive in bone cement. In my Patch Test Panel's I never have the metal panels run. I have known I react to nickle all my life. He ordered a blood tes stating this was more accurate than the Patch Test and I was told I must pay $600 up front as Medicare doesn't pay for this test. My blood test came back showing allergies to 5 metals, the bone cement was safe. He said there would not be one metal implant I could use; although not allergic to titanium, even titanium has traces of other metals I would react to. No problem as he could put in a ceramic coated implant so no metal would contact me and was ready to proceed. I did the homework on the "Gold" implant (called this as the ceramic is gold in color). Last year a class action lawsuit was filed as many have learned the bone cement won't adhere to the implant, moisture builds up between the ceramic coating and bone cement and the implant comes loose from the bone.I figure I am better off accepting the limitations I have now rather than risk rejection. I have a file with the exact name of this implant if interested I ill look it up.
I am appealing to Medicare to reimburse me for this blood test expense based upon my doctors "letter of necessity" because of my allergic history. Yet even if not reimbursed I am grateful for this test..

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I find your case fascinating because I have adhesive allergies as well and my first knee replacement had to be revised after 5 years due to the cement having “vanished”. Literally, there was no cement left when they went in to drill out the old knee, the doc just lifted it out without any problem! Now the revision is a bit loose. I wonder if my allergy to adhesive could be related to an allergy to bone cement thereby causing the cement to breakdown and vanish! My other knee is ready for replacement too and now I’m wondering if this is something I need to look at. Since I’ve had allergic reactions in the hospital to all forms of adhesive (from Bandaids to Tegaderm) I’m thinking I need to do the allergy testing. I’m also allergic to Nickel which piqued my inquiry.

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I went through very similar, such pain after TKR , tried so many things even the allergy test , which I had to pay vast amount of, only to show nothing. The search continues

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@mrsflutterby

I find your case fascinating because I have adhesive allergies as well and my first knee replacement had to be revised after 5 years due to the cement having “vanished”. Literally, there was no cement left when they went in to drill out the old knee, the doc just lifted it out without any problem! Now the revision is a bit loose. I wonder if my allergy to adhesive could be related to an allergy to bone cement thereby causing the cement to breakdown and vanish! My other knee is ready for replacement too and now I’m wondering if this is something I need to look at. Since I’ve had allergic reactions in the hospital to all forms of adhesive (from Bandaids to Tegaderm) I’m thinking I need to do the allergy testing. I’m also allergic to Nickel which piqued my inquiry.

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Nickel is probably the most common metal allergy because it is easily recognized. That's why costume jewelry has "nickel free" pierced earring posts. I learned early on my pieced ear holes would swell and turn black, but gold or surgical steel posts were okay sometimes but gold is the best. Blood Test showed I have a moderate nickel and moderate aluminum allergy the other metal allergies are only mild, but with exposure I have learned allergies become more severe. I do not understand why the 5 Day Extended Patch Test on the skin didn't show a reaction to metals. I even had it done twice for metals, yet I had clear reactions on the blood test. The full 5 Day Extended Patch Test testing for about 80 natural and chemical elements, plus the full metal panel is an additional cost. Basic 5 day test, $1,500 plus and Medicare pays for this. Yet Medicare wouldn't pay for the this metal test in the blood which my ortho said was more reliable for metals.
I learned I blister up from liquid bandage as well as other adhesive Band-Aid products. Yet some are okay. I do fine with the adhesive on paper tape. Also blood test showed no allergy to bone cement. This bone cement was not on my 5 day Extended Skin patch test.
If your bone cement is gone, it doesn't really vanish. It is transferred from your cells into your blood stream but I have no idea how long it lasts there before the body eliminates it.
You may not be allergic, but your body seems to attacking the bone cement to break it down and eliminate it.

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