← Return to Stage 5 renal failure: Docs says options are death or dialysis

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@gle

I had the same problem just before my transplant. 12 years ago, I had been evaluated for a liver and rejected at a local hospital because of my weight (too high). Four days after I left the hospital my kidneys failed and I went to the ICU and put on 24 hour dialysis. I was told I needed a liver transplant quickly and my doctors tried to find a hospital that would accept me. My nephrologist had a colleague that now worked at Mayo, Jax. The colleague asked for my chart and it was faxed to them. The next morning, Mayo called and told my nephrologist to get me on an air ambulance ASAP. The next afternoon my wife and I flew from Dallas to Jacksonville. I was admitted to the ICU and placed back on 24 hour dialysis. After 5 days of evaluation I was put on the top of the liver list with a meld of 43. (Extra points for the kidney failure.)
Of the team of nephrologists there, they said they would like to have time for a liver - kidney transplant, but I didn’t have the time to wait for a kidney. My liver was failing too quickly and I could live on dialysis until a kidney became available. Also, they said there was a great chance the kidney would start working again after the liver transplant. They said the kidney failure is from hepatal-renal syndrome. The diseased liver forces the kidneys into failure.
I had my liver transplant 10 days after I arrived at Mayo.
It turned out my kidneys did start working again, but not well. The best I got was a GFR of 26. They predicted I would lose the little kidney function I had and I would be put on the kidney transplant list in 5 years. As it turned out, 10 years after the transplant, the kidney function dropped to 17% and it has stayed in that area for almost 2 years. I am currently on the list, but looking for a live donor.

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Replies to "I had the same problem just before my transplant. 12 years ago, I had been evaluated..."

Thank you for your input I will soon be 76 and I do not qualify for a kidney due to diabetes and obesity. I know I have been in denial about the renal failure because I don't suffer from all major indicators. I can't understand the extreme flucuations from 13 to 16 gfr in one week.

@gle, Welcome to Connect. What an amazing story! We do share some similar experiences. It is remarkable that we have come this far, isn't it. I am thankful every day for my annonymous donor. And I have made it my priority to take good care of these "new" organs. I received both liver and kidney in a simultaneous transplant ( 1 donor, 2 organs, 1 surgery).

Since you are on the kidney transplant list and looking for a donor, I want to share the the Mayo Clinic Transplant - Page Recipient Toolkit and the Living Donor Toolkit. You will find information to share with potential donors. https://connect.mayoclinic.org/page/transplant/

Here is a discussion where members are sharing their firsthand accout about being a living donor.
Kidney transplant - The Journey from the Donor's Side.
https://connect.mayoclinic.org/discussion/kidney-transplant-from-the-donor-side/
I would enjoy hearing more about your liver tranplant experience, so I want to invite you to join me in the Liver Transplant Group. Currently there are some patients talking about their liver transplants as well as some post transplant complications in the Liver Support Group. https://connect.mayoclinic.org/discussion/liver-support-group/

I hope to join you there soon. -Just click the link, and post a response or question,. If you want help, let me know.