← Return to Emotional health after cancer: How are you doing really?

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@susan2018

@dianamiracle You responded to a post some time ago. I’m wondering how you are doing and what your experience with treatment for pancreatic cancer was like. My husband had Whipple surgery at Mayo the end of August 2019 for an IPMN pancreatic cyst which turned out to be malignant. All surgical margins were clear, all lymph nodes were clear. He recovered without any major complications. He currently is finishing his 8th cycle of Folfirinox chemo, 4 to go. It’s been a tough slog and we’re both pretty tired. He’s had one CT scan since beginning chemo, which showed no evidence of disease and his CA-19s have all been within normal range—even the one before surgery. I have to say I feel like I’ve lost touch with my former life. I’m wondering what life will be like after chemo, and how to deal with the uncertainty of the future.

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Replies to "@dianamiracle You responded to a post some time ago. I’m wondering how you are doing and..."

Good morning. I only did five flofoinox and this was pre surgery. My body couldn’t take any more of it. I followed with radiation and tried the oral chemo but had to stop it as once again my body’s did not react well. It was a choice to either eat or do the oral chemo. Eating was more important. I was supposed to do between 9 and 22 chemo sessions after the radiation but my body could only handle five. As my scans and numbers were fine we opted to discontinue the chemo. Listen to your (his) body and talk with your doctors. Life gets better, but I no longer set an alarm in the mornings and take it easy on a daily basis. Am starting exercising more vigorously lately. Moving is essential. I did see a psychiatrist and it really did help. I highly recommend this part of the treatment. Eat healthy and look to your higher power for strength!