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When the doctors don’t know

Just Want to Talk | Last Active: Oct 6, 2019 | Replies (6)

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@stuckonu

GM JK thanks for replying. I think you reply to my posts more than anyone. I want you to know that I very much appreciate your attention. I’m waiting to see if you liked my joke from yesterday. It really cracked me up when I first heard it from this young women who was a regular in those long ago “ chat rooms “ I loved her youthful irreverence. I once said to here somewhat seriously about her food choices reminding her: “ you know what they say:’ you are what you eat ‘ and she responded almost immediately ‘ so you are a rump roast ?’ I lagged so hard I was crying. I loved her spunk!
In any event, I didn’t know that Mass General is number two or that Mayo was number one because I honestly have heard quite a few well known hospitals either claiming to be 1 or 2 and maybe it’s more important what YOU THINK I think of it as placebo affect..
I also noticed how you said: “ it’s only 55 miles down the road. We MODERNS think differently than our grandparents who would travel 55 miles unless we were going to a place like no other. Living close to NYC ( 7 miles ) so it wasn’t too difficult to go to the big 🍎 apple to see a specialist. My grandparent were the ones in our family to do the research and decide where we needed to go for the best care especially if the illness stunned the band so to speak. I LOVED going to the city with Gram or Gramps but Grandma knew the city better than anyone I knew even though they both grew up in the city.
See how I digress! Sorry that I go off like that but that’s how my brain works which is great as an artist. If my play ever makes it somewhere you’ll see what I mean.
So you’ve had a liver transplant?
Is it true that transplant recipients must be on anti-rejection drugs your whole life.
Please understand this next question if your answer is yes to the rejection drug medications is it because it’s a precaution or is it necessary?
Thanks again for noticing me and my abstract questions

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Replies to "GM JK thanks for replying. I think you reply to my posts more than anyone. I..."

@stuckonu The ratings I quote are from US News and World Reports, which I think are generally considered to be the most accurate and reliable. I had my liver transplant at MGH and go there for almost all of my other medical needs and have not been disappointed, which I have been with local medical care. I loved my gastroenterologist there but he is now in NYC at Columbia so I even considered going there since my daughter lives in the middle of Manhattan and I could stay with her. I will travel to get what I consider to be the best medical care possible. Had MGH not come through with a transplant when they did I was ready to head to Mayo since they said they would accept the tests from MGH and they felt they could get me a transplant sooner.

Yes, transplant recipients are supposed to be on immunosuppressants forever. It is a precaution but more often than not a very necessary precaution. Occasionally people stop taking them because they can’t afford them and in some cases have been fine, but that’s a huge gamble, one that I would never take. Our insurance pays for the drugs, thankfully, but if not I think we would sell our home and downsize to have the money to pay for them. Interestingly, I have read that livers are the least apt organ to be rejected. My body and my youthful liver (it’s 37 years old) seem so far to be very happy together. Immunosuppressants are life-savers but can be a real nuisance. There is research being done to take some tissue from a person who will be getting a transplant and use that to somehow create a natural immunity, eliminating the need for immunosuppressants.
JK