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@stuckonu- Do you mean Idiopathic diseas? Idiopathic is an illness "relating to or denoting any disease or condition which arises spontaneously or for which the cause is unknown" (wiki) This si the hospital in New England that might work for your friend.
https://www.brighamhealth.org/
I have no idea if this answers your question.
Doctors are human beings with medical degrees and it's horrible when they misdiagnose, refuse to answer questions or don't confer or research the illnesses that lead to someone dying. It must be painful, to say the least, to lose that many close people. I have read and heard of so many people who have been misdiagnosed. For my second lung cancer the radiologist missed a cancer so it grew into 3 tumors. I was as livid as a dog when his bone is taken away. That led to another lobectomy and chemo for 4 months, 2x week. It almost killed me.
Surgeons miss things too many times. They are human beings, their training has them think inside the box in a scientific method, learning to pick out patterns, taking in our histories and physical exams. We are humans who err also and are not trained to speak to doctors. Often times we do not know how to express ourselves or what know the questions to ask. This can lead to confusion. Just recently I learned that I have 4 lung cancers in my lungs. It was my understanding that each lesion that showed itself to be cancer ( it grew) would be zapped or operated on, leaving me cancer free. My cancer, Multifocal adenocarcinoma of the lungs can be very tricky and very difficult to determine whether a nodule is cancerous or not. I did not know to ask any of my team if I was walking around with lung cancer, although I knew that I had these nodules. They did not think to say anything because the lesions became stable or indolent and were not life threatening. I do take some of the blame for this...we just didn't know... I think that humans are just such an unreliable species, an imperfect species living in a world that is not mechanically precise or geared to plain understanding and communicating.
Does any of this makes sense?
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GM Merry ( I knew a “ Merry “ once in NJ. I don’t think idiopathic is the term I’m think that I read about those years ago. I know that I read about something or hear on the news about break through procedures and or medicines which may even be in the news for a period of time then for reasons that are unclear that information fades like “ breaking news “ which IMHO is over used and misused ; there is always “ breaking news “ but it becomes hype and the lemmings who watch the news gobble it up as they go over the cliff. Oh no, my “ sin_ick “ is showing. Do you remember Laetrile or vitamin B17? Made from apricot pits and it cured cancer but you had to go to Mexico to get it. It was on the news every night then it was never heard of again and I would bet that wiki has something on it. But that is not the only example. I know that the B17 example is a little different than this type of medicine practice that I heard about. If we could bookmark these stories then we would have to remember an obscure name, place, time. But just like every post here that fades because the general interest is limited, the post fades and the ones that everyone finds interesting stays in the front of the notifications. So thank you for your contribution to my inquiry!
In JKs reply he mentions your comment about “ doctors are human “ it reminded me of the Stars and Strips news paper which often was the one American news we got while stationed overseas. I like that news paper, maybe because it was the only news paper but the stories were mostly of interest to soldiers covering stories of war and battles and we were always interested in what was happening in Nam. But there was one section called “ Graffiti “ and it was often on the back page. I honestly didn’t know the word Graffiti until I read Stars and Strips there was one Graffiti that stuck in my mind forever. I admit that I read it a few times. This is what it said: Doctors are people who Rx medicines that they know little about for illnesses that they know less about for people that they know nothing about. Even though it ended in a preposition , I thought that it was one of the wisest words I ever read about doctors. If I believed my mother and grandmother I would have kissed their ring while genuflecting when they walked in. I thought that most of these “ humans” saw themself as Rock Stars. I hate knowing how many male doctors took advantage of Barbara. It seems to be a cruel joke that she was misdiagnosed.
I wish you all the best in you persist of healing. I’ll pray for you to the best of my ability to pray.
TY again so much for your willingness to reply to my not so interesting post!