Sunnyflower, I'm a bit confused about what you're saying. How is my 'story not typical and quite frankly shocking!'? My goodness, you think I'm implying I'm fit? Oh, no, I'm afraid I haven't been 'fit' for many years. I am working on it, tho and determined to get there. I intend to live longer and better. I've had seizures since I was 11 years old and been on very tough meds for 60+ years! Believe me, that hasn't been easy and I've dealt with many, many tough side effects...through those years. That was just the beginning. I've just arrived at this place, through hard work finally getting to Mayo doctors, multiple hospitalizations, and lots of prayers. I began the 'exercise' in the therapy pool when it was prescribed by my Mayo neurologist as the only exercise I can do, as something I must do for the rest of my life, as I am able. Understand, that exercise consists of WALKING in the water, and such movements. AND, it exhausts me. Mall walking is only now beginning, as I mentioned. I'm so excited to begin this effort. And, believe me, all this is a huge effort. January 2019, I was in the hospital 4 days for congestive heart failure, serious edema made it almost impossible to walk! I lost 9.5 pounds the first night in the emergency room after IV lasix! It took me weeks in rehab and with home health care to begin to live again. I'm thrilled I can walk! And most days, I can. I often gain 5-8 pounds from 1 day to the next, since my hormones don't deal with the sodium in my body....haven't had any salt in my diet for over 50 yeears. I began working with Mayo last April after I was diagnosed a 3rd time with MS. Mayo neurology has saved my life!! I don't have MS! Misdiagnosed for 12 years! Don't have Parkinsons, as I was diagnosed. Don';t have myasthenia gravis, as diagnosed. I do see double most of the time....This has been a very difficult, lonely, long journey to finally find the doctors who helped me, who have given me true diagnoses, excellent testing and treatments. I still hurt all day. I still use a cane and a walker when going out. But, my bones are stronger! My heart is healthier! My seizures are less/gone. Tremors are controlled. I can now stand up from a chair all by myself!! That's a milestone! Due to strenthening, working in the warm water and the walking I've been beginning. I hope this helps you understand where I'm coming from...actually, there isn't anything 'typical' about me...and I llike that. God forbid these challenges would be typical! I wouldn't wish that on any human. I, too, will be interested to know the next bone scan results. Last time, I was amazed that I had improved so much. At 35, my son was 12 years old, played soccer, needed his mom. I was told I'd be in a body brace in 3 years, a wheelchair in 5 years. I told the doctor 'NO!" And found a new doctor! ANd began my fight! I still fight against a wheelchair!!! I'm still fighting......

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