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Calcium and Vitamin D for bone density

Osteoporosis & Bone Health | Last Active: Jan 29 8:02am | Replies (340)

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@ess77

Sunnyflower, I'm a bit confused about what you're saying. How is my 'story not typical and quite frankly shocking!'? My goodness, you think I'm implying I'm fit? Oh, no, I'm afraid I haven't been 'fit' for many years. I am working on it, tho and determined to get there. I intend to live longer and better. I've had seizures since I was 11 years old and been on very tough meds for 60+ years! Believe me, that hasn't been easy and I've dealt with many, many tough side effects...through those years. That was just the beginning. I've just arrived at this place, through hard work finally getting to Mayo doctors, multiple hospitalizations, and lots of prayers. I began the 'exercise' in the therapy pool when it was prescribed by my Mayo neurologist as the only exercise I can do, as something I must do for the rest of my life, as I am able. Understand, that exercise consists of WALKING in the water, and such movements. AND, it exhausts me. Mall walking is only now beginning, as I mentioned. I'm so excited to begin this effort. And, believe me, all this is a huge effort. January 2019, I was in the hospital 4 days for congestive heart failure, serious edema made it almost impossible to walk! I lost 9.5 pounds the first night in the emergency room after IV lasix! It took me weeks in rehab and with home health care to begin to live again. I'm thrilled I can walk! And most days, I can. I often gain 5-8 pounds from 1 day to the next, since my hormones don't deal with the sodium in my body....haven't had any salt in my diet for over 50 yeears. I began working with Mayo last April after I was diagnosed a 3rd time with MS. Mayo neurology has saved my life!! I don't have MS! Misdiagnosed for 12 years! Don't have Parkinsons, as I was diagnosed. Don';t have myasthenia gravis, as diagnosed. I do see double most of the time....This has been a very difficult, lonely, long journey to finally find the doctors who helped me, who have given me true diagnoses, excellent testing and treatments. I still hurt all day. I still use a cane and a walker when going out. But, my bones are stronger! My heart is healthier! My seizures are less/gone. Tremors are controlled. I can now stand up from a chair all by myself!! That's a milestone! Due to strenthening, working in the warm water and the walking I've been beginning. I hope this helps you understand where I'm coming from...actually, there isn't anything 'typical' about me...and I llike that. God forbid these challenges would be typical! I wouldn't wish that on any human. I, too, will be interested to know the next bone scan results. Last time, I was amazed that I had improved so much. At 35, my son was 12 years old, played soccer, needed his mom. I was told I'd be in a body brace in 3 years, a wheelchair in 5 years. I told the doctor 'NO!" And found a new doctor! ANd began my fight! I still fight against a wheelchair!!! I'm still fighting......

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Replies to "Sunnyflower, I'm a bit confused about what you're saying. How is my 'story not typical and..."

Dear ess77, thank you for your response. You said you had osteoporosis at a young age (35??, not in front of me now) and you said that wasn't typical. You talked about some weight-bearing exercises you do and your active lifestyle. I have learned that is great for and helps to prevent osteoporosis. That information you shared about yourself made me surprised to hear about your osteoporosis journey.

I 'm just now learning about Osteoporosis in detail. I didn't realize young active people who do weight-bearing exercises and have active lifestyles still get it.

I am in bed about 95% of the time. I have a lot of other diseases and am very weak. I thought my mobility limitations and weakness were huge contributing factors to my osteoporosis and osteoporosis in the general population. This is the perspective I'm coming from. Your story was very new to me.

I apologize if I upset you and feel terrible that you missed the compassion, support and good-will I extended to you.

I hope you can forgive me.

Myself and many others here are very empathetic toward one another's pain, struggles and hardships and try to express that so we know we're not alone and that we can understand and have experienced a lot of what each other go through. Not everything and not exactly, but a great deal.

I care very deeply about you and each person here on Connect.

Warmest regards, Sunnyflower 🌹