Calcium and Vitamin D for bone density

@hopeful33250 I sent him a message on the portal about that but his office takes forever to respond to portal messages, very poor. As I mentioned, he said he wanted to prescribe vitamin D but he left it there!

Teresa, on a prior post you mentioned pain from osteoporosis. I don’t think I have that pain, do most people? My legs do hurt at times but I attribute that to exercise and activity. Maybe it’s osteoporosis pain?
JK

@contentandwell I'm surprised also . I would ask him for a D level check in blood work How does he know how low you are or how much you need?

Bone pain seems to be common with bone loss, @contentandwell. When I lay down at night the shins in my legs and often the bones in my arms really ache, it's not a muscle ache but a bone pain. Is that what you experience as well? Have you had your parathyroid hormone level checked recently? As long as you are bothering your doctor, why not ask about that as well. An abnormal parathyroid level can cause bone loss, too.

I really think you should take vitamin D3. It helps with balance - a lot! I have three medical journal articles about this very issue. Also, ask your PT for some exercises for balance and recovery - so if you start to fall you can right yourself. My PT did this for me. I can't tell you how much vitamin D3 to take - but get a blood test first to see where you are at. I like my D level to be up around 80 or 90. I started at 3. It took a long time of big doses (4,000 IU up to 10,000 IU) to build it up. I never get a cold or the flu (knock on wood). My balance is really wonderful considering how sickly I am. Ask your transplant team about it. You can get vitamin K2 from eating arugula and kale - K2 tells your body where to send the calcium. If you don't take K2, some doctors say the calcium can wind up in your arteries. I take a K2 supplement because I'm not always ready to eat kale (although I hide it in my veggie burgers).

@lioness He just called me! Yes, he wants me to get it tested, and then to get a high level of vitamin D probably after he sees the results. He is also having me get my magnesium tested.
JK

Bone pain seems to be common with bone loss, @contentandwell. When I lay down at night the shins in my legs and often the bones in my arms really ache, it's not a muscle ache but a bone pain. Is that what you experience as well? Have you had your parathyroid hormone level checked recently? As long as you are bothering your doctor, why not ask about that as well. An abnormal parathyroid level can cause bone loss, too.

Regarding folks concerned with bone health and calcium and vitamin d and all of that..
After trying to treat pain in muscles and hands and feet and shoulders with vitamins and etc. I finally was diagnosed with osteoporosis with my bone scan results at the highest on the scale of bone loss. I now take daily injuctions of tymlos, a treatment to "rebuild " none mass. 2 year treatment, once a day, 80 units. Am in my third month on it. Dr gave me whole new perspective on calcium and other stuff I was taking. I am 75, 114 pounds and have never broken a bone, even when I have fallen on ice and UP a stair. Scoliosis also. Was really shocked my bone density was so bad!

@georgette12, Thanks for posting. I am also on Tymlos about month 4. Have you had any side effects? Why did you choose Tymlos? I am 77 and was shocked that my bone density was a health problem.

Then I remembered, my mother, fell and broke her hip at about 83. She never walked or smiled again. Let's make a pact that we will do what is necessary to live the best quality of life we can.

You mention that your treatment is for 2 years. Mine is 18 months. Then what? Did your Dr tell you what you would be given to maintain the bone density that the Tymlos created? Be safe and protected. Chris