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Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)
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@barbie75

I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading to the diagnosis was a right foot problem similar to yours. Three doctors looked at my foot could not diagnose any specific problem and insisted that I just learn to live with it. After the PV diagnosis when I had 2 mild strokes, the hemotogist also claimed that my foot issues had nothing to do with the diagnosis of PV or the strokes. After the strokes, my foot pain and discoloration faded. Now it is back and am concerned about having another stroke.

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beanglow | @beanglow | Sep 28, 2019

Thanks for your reply. My PCP did not seem to be concerned about it. I showed it to my hematologist/oncologist and he didn't seem to be concerned about it. I had an appointment to have an ultrasound on my legs and to see a vascular surgeon but had to cancel because I also have Chronic Intestinal Pseudo Obstruction and Sjogren's and was just too sick to go to the appointments. I have researched MDS and petechia is one of the symptoms of MDS. What is PV and which doctors do you see?

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