← Return to Testing Positive and Negative after MAC Treatment

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terryb1 (@128128terry11t)

Testing Positive and Negative after MAC Treatment

MAC & Bronchiectasis | Last Active: Oct 17, 2019 | Replies (18)

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@windwalker

@12818terry11t, Hi Terry. When you were taken off meds and testing negative for mac, were you not taking any kind of antibiotic for two years? If that is the case, you need to know that mac patients cannot be totally drug free. We need to be on lose dose maintenance meds to keep the mac away. The circumstances that allowed you to get mac in the first place, do not go away with antibiotics. This is what my Mayo dr explained to me. The preventative maintenance meds have kept me mac free since 2014.

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Replies to "@12818terry11t, Hi Terry. When you were taken off meds and testing negative for mac, were you..."

Sorry forgot to reply to the two year confusion: I had been on the meds for two years when I was taken off after all those negatives. Bummer when the one given at that visit tested positive.

@windwalker I am going off the meds in 2 months and my specialist is insistant on just going off without taking anything else to stop the MAI to return. I am not happy about about this so will write to her using your wordings above. I guess I would take something different to you having MAI not MAC