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freeangel (@freeangel)

I am not ok with this at all

Neuroendocrine Tumors (NETs) | Last Active: May 29, 2020 | Replies (19)

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@feebee

I also was 48 when first diagnosed with NETs. My primary care Dr. totally missed the ball on my case. After years of various health problems including a diagnosis of Hashimotos thyroiditis I was sent for a colonoscopy and upper GI. Both tests came back normal but the smart gastroenterologist sent me for capsule endoscopy which found my tumor. Had surgery and was diagnosed officially with stage 4 NETs. Was in lymph nodes and liver. Six years later I have spot on my liver and doctors keep sending me for MRI liver biopsy etc.. Have an appointment with new oncologist this month. He's filling in until our town finds a new oncologist. No one seems to have an extensive knowledge of nets in my area. We will see what happens.

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Replies to "I also was 48 when first diagnosed with NETs. My primary care Dr. totally missed the..."

@feebee, I wish you the best with your new oncologist. Have you considered traveling to a center that specializes in NETs for a second opinion?