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Chronic Bacterial Infections After Colds

Autoimmune Diseases | Last Active: Sep 22, 2019 | Replies (3)
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@asthmaorsomethingelse

Hi @johnbishop - Thanks so much for the quick reply. I am so sorry you have had similar symptoms and experiences. It is really no fun.

Yes, my doctor thinks I may have an underlying undiagnosed autoimmune disease. We haven't been able to figure out what it is. We've done allergy and all kinds of blood tests when I'm healthy and when I'm not. When I'm healthy, everything looks normal. When I get sick, however, everything drops. I've seen around 7 different physicians and asthma/allergy doctors and no one has figured anything out beyond my asthma. My asthma is well controlled when I am healthy and I'm able to lead a normal life - I run and do hot yoga 7 days a week when I'm not sick and have no issues.

I just sent in a request to the Mayo Clinic. Do you think it is worth my time and energy going there?

Thanks so much. The quick response means a lot.

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John, Volunteer Mentor | @johnbishop | Sep 22, 2019

Hi @asthmaorsomethingelse, I do think Mayo Clinic is one of the better if not the best places to go when you need answers. I like that the doctors work together to help you. A little over a year ago I went to Rochester Mayo Clinic for a swelling problem with my right leg and had tests done for lymphedema. The cardiologist talked to me during one of early exams and I had told him I snore a lot and sometimes toss and turn a little but thought that I slept OK. He setup an appointment with sleep medicine for me and I did a home oximeter study which showed I wasn't getting enough oxygen. They setup an overnight study which showed I had severe obstructive sleep apnea which wasn't even on my charts of things to worry about.

I'm not sure if you've heard or seen this story but thought it might be helpful -- What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

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