@windwalker Hi Terri!! Great to hear from you!!! Wow..I'm excited now! I started the drug yesterday! I have had several exacerbations so we decided it was time to get tough. I feel so blessed to have found Dr. Colin Swenson at Emory St. Joseph. He is running the trial!!

I had never heard of this. We will be combining with 2 others..so still 3. He has ordered Arikayce..and Azithromycin, and I have a schedule to start them over the next 2 months.

My stomach was being destroyed by Doxycycline I was taking, and I was so sore..I was afraid to dump it in there yesterday..but so far so good!!!