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← Return to Anyone taking Clofazamine???
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MAC & Bronchiectasis | Last Active: Apr 28 8:52am | Replies (19)
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@gaylewroc Hi Gayle. There was discussion at the World NTM Conference back in 2016. I was there and it was a drug they discussed that held great promise. I believe some physicians can get it prescribed as a specialty drug for rare diseases. It is a good alternate for those that are found to be non-suseptable to other antibiotics. https://www.ntminfo.org/clofazimine/ When will you start the study?
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@windwalker Hi Terri!! Great to hear from you!!! Wow..I'm excited now! I started the drug yesterday! I have had several exacerbations so we decided it was time to get tough. I feel so blessed to have found Dr. Colin Swenson at Emory St. Joseph. He is running the trial!!
I had never heard of this. We will be combining with 2 others..so still 3. He has ordered Arikayce..and Azithromycin, and I have a schedule to start them over the next 2 months.
My stomach was being destroyed by Doxycycline I was taking, and I was so sore..I was afraid to dump it in there yesterday..but so far so good!!!