@amywood20 Sometimes we have to take things one day at a time. TOS requires patience for recovery, and there is surgery for TOS, but my doctor advised against it because creating scar tissue there will just add to the tightness that already exists, so I wouldn't assume a diagnosis of TOS would automatically indicate surgery. My therapy is myofascial release for TOS, and some strength training, but limited, so as not to kick up symptoms. I would think that using crutches will hurt in your present condition, so think that over if you really want to do a surgery that will require crutches for a while. Also, don't diagnose yourself. No doctor will want a patient telling them how to do their job. the Mayo doctors can take care of things, and your job is to explain your symptoms. They can easily test for TOS by listening to your pulse in your neck and have you turn your head. When you have TOS along with a cervical spine issue, you have overlapping symptoms.

Yes, you can have TOS symptoms while on your back. It is raising the arm that brings it on. The problem is the front of the chest is too tight and it causes the shoulder blades to wing out. Bad slouching posture causes symptoms too.

The tingling in your leg can be from a pelvis dysfunction and it can seem like a lower spine problem. My TOS causes tightness from my jaw to my pelvis on one side and it causes my pelvis to twist out of shape. You might want to read the training and Rehabilitation article on that. https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

Good luck with appointments.

@amywood20 I'm sorry I missed your response. I've been traveling and not online.

I know from my own experience with TOS, that overdoing any strength training resistance or weight lifting can kick up the symptoms. I have had the unbalanced chest tightness on one side be enough to cause a functional scoliosis and rotate my chest out of shape. It has caused me to loose complete feeling in my left arm below the elbow on one side of the forearm, and that was only relieved when therapeutic stretching rotated the thoracic vertebrae back in line, and my therapist stretched the tight areas on the front of my chest and neck with myofascial release. I get ribs that twist out of position. I was worried about loosing complete feeling because at the time, I still had spinal cord compression and was still looking for a surgeon willing to help me, so it made that seem like it was spine related, but it wasn't; it was the TOS doing that.

When you describe TOS symptoms laying on your back, that says to me that the front of your chest might be to tight, and that might be what you are feeling. If you stand sideways and look in a mirror, do your shoulders line up under the center of your neck or are they forward? When I first started laying on a foam roller, and stretching my arms out perpendicular to my body, they were so tight, they could not stretch to touch the floor. Doing this over time got them to the floor, and they are even better now because slowly I work at all the tight areas that are resisting that movement.

The ankle pain you mentioned can be caused by nerve compression anywhere along the path to the ankle. It can even be from overly tight muscles in your hips and pelvis. For me, I had a similar pain in my ankle that felt like a dog was biting me that was caused by bone spurs contacting my spinal cord in my neck. I could turn that pain on and off just by rotating my head. That was my first symptom of cervical stenosis before anyone diagnosed the spine problem, and that connection was missed by all the doctors I saw before I came to Mayo as being related to the cervical stenosis. I found medical literature with a case similar to mine, and I wrote to a surgeon at Mayo with that and he took me as a patient.

Here's a link about lots of pelvis alignment issues
Lumbar plexus Compression https://trainingandrehabilitation.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

I see from the calendar, that you have probably had your knee scoped by now and met a spine surgeon. You do have a lot on your plate right now with possible shoulder surgery too. Any surgery will create scar tissue that will tighten your fascia and can make symptoms worse, and recovery is better when you can stretch this out with MFR therapy. It seems like you may need to choose your priorities of what should be addressed first. If you have TOS, most often MFR therapy is best over a long term because surgery for TOS can create more scar tissue that just adds to the problem. I was advised against surgery for TOS. I know a lot of this can be overwhelming, and the tricky part is when the pain originates somewhere else, and you had all this testing on your ankle. With knee problems, you can have issues with your pelvis and it's alignment which can cause sciatic pain and it seems like a spine problem. That is very treatable with physical therapy and MFR, and I've had pelvis alignment issues too and it all connects through my body as tightness from my neck and chest to my hips and pelvis. You'll need an expert level MFR therapist to figure all that out when you are able to work on it with your doctor's blessings. It takes a lot of patience when you are recovering from surgery and can't do therapy, but it's all part of a good recovery and following post op instructions. I went through that too when I was waiting for my spine to fuse and everything tightened up from surgical scar tissue. Work out your plan and in what order you need to do things to recover. Set your goals, and then you will take baby steps for awhile until you can get there, but you will get there. Believe that, and you can do it. Pay attention and get sensitive to the nuances of your symptoms and your progress. It helps to write it all down so you can chart your progress. You might not be able to continue with weight lifting as a regular routine. You'll need to listen to your body on that after you have recovered from any procedures. Work with a physical therapist and discuss that when the time comes.

As for anxiety, I've been there too. I was terrified of spine surgery, but I worked through that, and facing all my fears and learning from them changed my life. There is always a lesson in the adversity we face if we are open to learning from it. Fear can sneak up on you and be there in the background distracting you in your decision making. I've learned how to manage fear, but I'm not immune to it; I just recognize it sooner now and can take steps toward overcoming it. Just prior to my travels, about the time of your response, I was dealing with a dental issue that sent my anxiety upward again. We all are affected by our fears early in life and the patterns we learn, and I still have work to do. Work out whatever you need to do to ease your stress. For me that was using music and art as therapy.

Hopefully by now you have some more answers, and a better path toward your decisions. Let me know if I can help any further.