@jenniferhunter THANK YOU for all of this! As I have been researching possibilities, TOS was one that I have been wondering so we are on the same page there. When I see the specialist the first part of November I certainly plan to ask about it. I've even mentioned that one to my husband. He doesn't understand or care to research medical stuff so he usually doesn't have anything to add. None of this was from whiplash or any sort of an accident. I used to be a runner and then when I started having knee surgeries starting in 2008-2016 (lateral release on both knees and then three additional surgeries on the right for scar tissue) I turned to weight lifting. Had a hip labrum repair in 2016 as well so I focused a lot on upper body since lower body was out for a while. Seems everything we do causes neck movement and with weight lifting, it's a given. When I am at Mayo next week for my PKD/PLD I have on my list of questions the lower lumbar issues I have and what role, if any, the PKD/PLD is playing with the disc issues there. I am blessed at this point that I don't have an enlarged abdomen from the disease and actually, am doing pretty well. I do have some large cysts in my liver which is one reason I am coming to Mayo. Liver docs here don't know from it and the two I have seen said there is nothing they can do for me. I do know my liver is big and that is probably pushing on things, with the kidneys could be too. I will slip in the cervical spine issues too. In fact, I was planning on bringing my recent imaging in the off chance they let me meet with someone there in the spine area. I know as far as setting an actual appointment, they would not let me do so UNLESS I met with an internal medicine doc, as that is who I was told they would set me up with if I had more than two issues to be addressed. I would have lost the appointment with the kidney doctor that I have really been wanting to see. Of course the internal medicine specialist probably would have consulted with her or others but I didn't want to risk it. She is the reason I am coming to the Rochester location, as quite a few in a Facebook group I am in for the disease have seen her and rave about her. She's very popular in that group. She is the one that also scheduled me with the liver specialist, as those appointments are pretty much back to back on Tuesday. But yeah, I am not giving up and I will go to specialist after specialist if I have to until I feel like I am being heard and all possibilities are being looked at. I am one that believes we have to be our own healthcare advocate. It would be wonderful if the spine specialist here locally I will be seeing can figure all of this out. This neuroscience center is the best in our state, which is another reason it takes so long to get an appointment there. It is taking me just as long to get in there as it was to get in with the kidney specialist at Mayo. LOL.