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Aromatase Inhibitor side effects - dry mouth

Breast Cancer | Last Active: Sep 20, 2019 | Replies (6)

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@lisman1408

Cfacarol, Welcome! Like Trixie, I’ve been on a few meds trying to find the one with the least side effects. In April of 2018, I was diagnosed with stage 2A. I had surgery, then radiation starting in July 2018. When radiation was finished I started taking Anastrozole in September 2018. Then I broke out in some pretty severe hives about 3 months after I started taking Anastrozole. I ended up on a course of steroids to relieve the hives because none of the oral allergy meds gave me any relief. My oncologist isn’t sure if the hives were a ‘side effect’, or if there was something in the Anastrozole that I am allergic to. She switched me to Tomoxifin, after the hives went away we’re relieved with steroids. The worst side effect for me has been some cognitive/memory loss issues while on either of these meds. Those issues are better on Tomoxifin, but not fully relieved. My cancer was a very slow growing form and I’ve been on a ‘break’ from meds since late last spring to see how my body reacted. I cannot believe the difference! I feel almost like my old self again. I see my doctor next week and I suspect she will recommend going back on Tomoxifin. I’m NOT looking forward to that. But I know I have an excellent oncologist, and need to listen to her expertise.

Good luck to you! Let us know how you are doing as you move through this journey. The support and information I have found on this board from others in similar situations has been very valuable and so supportive!

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Replies to "Cfacarol, Welcome! Like Trixie, I’ve been on a few meds trying to find the one with..."

Thank you so much for responding. I just discovered this website/board or whatever it’s called. Since I have no friends or family with breast cancer and had to drive a long distance for treatment I’ve had no one one who really understood what I was going through.
Although my dry mouth seem trivial, it means so much to finally have someone who really understands to communicate with. I know my family is sick of hearing me complain so I try not to mention breast cancer any more. Have to admit that in addition to the dry mouth I just don’t really feel great. Have an appointment with an oncologist at the end of October.....hope I’ll find out more then. Meanwhile I’ll continue to take The AI.