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What topics do you want for the Neuroendocrine Support Group?
Neuroendocrine Tumors (NETs) | Last Active: Feb 8, 2023 | Replies (45)Comment receiving replies
I would like to learn about various ways to deal with pain. There seem to be several medications you can take with varying side effects. Some, like constipation, make the pain even worse. What other options are there? We have tried CBD, Essential Oils and that has not helped. Can we talk about pain pumps and how they work? Appreciate your putting on these support group meetings. I wish I had known about this when we started our journey at Mayo in 2016!! How come no one told us about Mayo Connect and the support group????
Replies to "I would like to learn about various ways to deal with pain. There seem to be..."
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Hi @coolwino, welcome to Connect. I'm sorry that you didn't find us when you started this unwanted journey in 2016, but I'm very glad you found us now. The in-person support group in JAX is new and luckily they are also accessible by teleconference so you don't have to be in Jacksonville to take part. Because you are following the NETs group, you will receive an email notification of upcoming meetings and the topic.
Pain and Cancer is a great topic to discuss here on Connect too. Might I suggest that you start a new discussion devoted to that topic to gather suggestions and coping strategies from other members. Here's how to start a new discussion:
Here's how to create a new discussion post.
1. Go to the NETs group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
2. Click START A DISCUSSION
3. Enter a title and message. For example "Pain and Cancer"
4. Click CREATE DISCUSSION.
You can find more tips about how to use Connect in the Get Started Guide founder in the footer at the bottom of any page on Connect. Here's the direct link: https://connect.mayoclinic.org/get-started-on-connect/