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lydiamay1 (@lydiamay1)

Unexplained Severe weakness, losing hope

Brain & Nervous System | Last Active: Sep 8, 2020 | Replies (22)

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@lydiamay1

Thank you! I’ll mention this to my neurologist. The only thing I see a bit different is mine is mostly a severe weakness as apoposed to neuropathy and it’s mostkg in my arms and hands.

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Replies to "Thank you! I’ll mention this to my neurologist. The only thing I see a bit different..."

Agreed. Wondering if there are multiple happenings/diagnosis. If you have not heard of Chasing the Cure, please Google it! Ann Curry hosts a weekly live broadcast of severe situations that people can't find proper diagnosis for. In some cases they live in remote areas (one case was a mother and daughter from Alaska) where top medical attention is not offered or some people simply can't afford places like Mayo. In any case the approach is to have a full world wide live broadcast tapping into all networks of social media to have people weigh in with thoughts or common experience. Also, a multi disciplinary team if Doctors (some from Mayo) brainstorm and trouble shoot for a path forward, most always getting patients what they need for free. It is amazing! Please look it up.
Rachel

Hello @lydiamay1,

It has been a while since you last posted. I hope you are doing better.
Have you had any success in finding a diagnosis and/or treatment plan for the weakness you've experienced?