1. < Neuropathy

Ideas for pain relief from Small Fiber Neuropathy (SFN)

Posted by somisgirl @somisgirl, Sep 6, 2019

I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health other than the onset of this about a year ago. I do not have diabetes or any other detectable health issues.
I started some new things a few weeks ago and this week I have had some remarkable relief. I am not sure if what I have done is why, or which thing might have helped, but still wanted to pass this along just to give some of you some things to try.

I wear compression socks. This seems to help with the pain and pressure I feel in my feet and ankles.
I started taking Evening of Primrose oil twice a day.
I have cut my caffeine intake by at least two-thirds and now drink mostly green or black tea. I had heard that caffeine could irritate nerves...worth a shot.
I exercise, which I have been doing for over 20 years. I think it improves circulation which I think really helps with nerve health.
I added niacin. I will aid in blood flow, also good for circulation.
I use a cream called DMSO which i put on my feet and ankles in the morning (numbs the pain)

I don't know if any of this could be helpful for you or not, But I seem greatly improved recently......I have tried everything and am always looking for new things to try in order to function with this awful condition.
I am still taking 600mg of Gabapentin 3 times a day and 20 mg Citalopram once a day and have been for 9 months. I do not take any other medications.

Blessings to all of you and I hope there is a cure some day. I intend to keep looking for solutions that do not require medications!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Feb 21, 2020
In reply to @rwinney "Good morning everyone- I have good news to share! Today I'm feeling hopeful because I applied..." + (show)
@rwinney

Good morning everyone-

I have good news to share! Today I'm feeling hopeful because I applied for the Jacksonville Mayo Clinic 3 week pain rehabilitation program.

There have been some worthy posts that peeked my interest but, I wasnt ready to commit. Yesterday, and lately, I've been feeling extremely hopeless. When that happens the moment has to hit me, and I will search very hard for hope.

I watched the video on Mayo's site explaining Central Sensitization and saw my exact blueprint from eyes to head to neuropathy to irregulation, pain and torment. It was indeed an emotional validation of my entire bodies dysfunction and debilitation. I strongly recommend watching if you are looking to think out of the box.

My concern over cost and ability hold me back alot in this life. It's just my nature. Truth is, as my husband reassures me, I am very fortunate to have an incredible support system from my family.

So, Y O L O....you only live once.
And for the record, this is NOT living!

I will remain optimistic that my insurance is accepted and I am accepted. We (my family and I) can cover added expense and I can will myself to physically make it happen.

I will not settle, can not settle and today I hope I have provided inspiration to anyone who is able or willing to think and feel the same.

Be well-
Rachel

Jump to this post

@rwinney, thank you for sharing your good news and hope! I'm not sure if you are aware of this information but it may be worth checking it out...

Charitable Care and Financial Assistance at Mayo Clinic
-- http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @lioness "@rwinney That sounds good keep us posted I'm going to look for that video central sensation..." + (show)
@lioness

@rwinney That sounds good keep us posted I'm going to look for that video central sensation is that it ? Glad your going for it .

Jump to this post

Thanks Linda. 🤞

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @johnbishop "@rwinney, thank you for sharing your good news and hope! I'm not sure if you are..." + (show)
@johnbishop

@rwinney, thank you for sharing your good news and hope! I'm not sure if you are aware of this information but it may be worth checking it out...

Charitable Care and Financial Assistance at Mayo Clinic
-- http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

Jump to this post

Hey John
I will definitely check it out. Thank you very much. ☺
Rachel

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @lorirenee1 "@rwinney Rachel, You go girl! Do not give up! You go to Mayo, and may you..." + (show)
@lorirenee1

@rwinney Rachel, You go girl! Do not give up! You go to Mayo, and may you learn a lot, and hopefully, have some improvement. Like I said, you are inspiring! Hope is very important. Hang on. Persevere. God Bless you, Lori R.

Jump to this post

Thank you for your support Lori Renee. Now let's just hope I get accepted. 👍🏼
Rachel

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @lioness "@rwinney That sounds good keep us posted I'm going to look for that video central sensation..." + (show)
@lioness

@rwinney That sounds good keep us posted I'm going to look for that video central sensation is that it ? Glad your going for it .

Jump to this post

Overview - Pain Rehabilitation Center - Mayo Clinic
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

REPLY
1 reply
Jane | @darlingtondoll | Feb 21, 2020
In reply to @rwinney "Good morning everyone- I have good news to share! Today I'm feeling hopeful because I applied..." + (show)
@rwinney

Good morning everyone-

I have good news to share! Today I'm feeling hopeful because I applied for the Jacksonville Mayo Clinic 3 week pain rehabilitation program.

There have been some worthy posts that peeked my interest but, I wasnt ready to commit. Yesterday, and lately, I've been feeling extremely hopeless. When that happens the moment has to hit me, and I will search very hard for hope.

I watched the video on Mayo's site explaining Central Sensitization and saw my exact blueprint from eyes to head to neuropathy to irregulation, pain and torment. It was indeed an emotional validation of my entire bodies dysfunction and debilitation. I strongly recommend watching if you are looking to think out of the box.

My concern over cost and ability hold me back alot in this life. It's just my nature. Truth is, as my husband reassures me, I am very fortunate to have an incredible support system from my family.

So, Y O L O....you only live once.
And for the record, this is NOT living!

I will remain optimistic that my insurance is accepted and I am accepted. We (my family and I) can cover added expense and I can will myself to physically make it happen.

I will not settle, can not settle and today I hope I have provided inspiration to anyone who is able or willing to think and feel the same.

Be well-
Rachel

Jump to this post

I hope you have success with your trip to Mayo.

REPLY
1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Feb 21, 2020
In reply to @rwinney "Thank you for your support Lori Renee. Now let's just hope I get accepted. 👍🏼 Rachel" + (show)
@rwinney

Thank you for your support Lori Renee. Now let's just hope I get accepted. 👍🏼
Rachel

Jump to this post

I have my crystal ball out and it is sending sparklers your way. Seriously, good job. We support your efforts and look forward to everything you can bring back to help all of us.

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @lioness "@rwinney That sounds good keep us posted I'm going to look for that video central sensation..." + (show)
@lioness

@rwinney That sounds good keep us posted I'm going to look for that video central sensation is that it ? Glad your going for it .

Jump to this post

@lioness Overview - Pain Rehabilitation Center - Mayo Clinic
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2020
In reply to @artscaping "I have my crystal ball out and it is sending sparklers your way. Seriously, good job...." + (show)
@artscaping

I have my crystal ball out and it is sending sparklers your way. Seriously, good job. We support your efforts and look forward to everything you can bring back to help all of us.

Jump to this post

I'm all about that, Chris. Catch me on a strong day and watch out!!! 💪🏼💪🏼💪🏼
Thanks so much.
Rachel

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