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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)
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@calliopy2

I suffer from spinal stenosis with bilateral neuropathy. Loma Linda Hospital in California has a 75% cure rate using Physical therapy with ultrasound, acupressure, and massage to encourage blood flow and neurogenesis. They have completed a 10,000 cohort study and are beginning a second study. There is help, but you have to live near Loma Linda Hospital. I live in the south and have no support. The last MD told me I was getting old, a fact that I am reminded of each time I pass a mirror. Does our zip code reflect our quality of healthcare?

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Replies to "I suffer from spinal stenosis with bilateral neuropathy. Loma Linda Hospital in California has a 75%..."
Robin | @birdierobin | Feb 17, 2020

It does seem to matter unfortunately I wish you the best

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John, Volunteer Mentor | @johnbishop | Feb 17, 2020

Hi @calliopy2, Welcome to Connect. You are right, where you live shouldn't reflect our quality of healthcare but unfortunately if you live in an area away from major healthcare facilities that is the case. I looked at their website and see that they have claimed a 75% success rate treating peripheral neuropathy. I see they are still looking for test subjects if you live close or can travel...

Neuropathic Therapy Center seeking participants for diabetic peripheral neuropathy study
-- https://news.llu.edu/research/neuropathic-therapy-center-seeking-participants-for-diabetic-peripheral-neuropathy-study

I'm thinking a lot of this type of treatment depends on the condition of the nerves - pinched, damaged or dead. I'm not sure a dead nerve would be helped with this treatment but then I'm not a medical professional so really do not know. For me, the cost is quite high considered there is no guarantee. It definitely could be a promising treatment if it really has as high of a success rate as they say.

I wonder if we have any members who have tried Intraneural Facilitation (INF) treatment for neuropathy.

@calliopy2 have you heard about Myofascial Release Therapy? It may be another possibility to help with your spinal stenosis with bilateral neuropathy. @jenniferhunter may have some thoughts or suggestions for you.

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Chris Trout, Volunteer Mentor | @artscaping | Feb 17, 2020

Good evening, @calliopy2, Welcome to Connect. I am sorry you find yourself ineligible for service at Loma Linda because of your location and level of financial support. Having lived near there for 20 years, I understand those frustrations.

Are you aware that clinicians and other providers at Mayo Clinic have a network that enables staff in another hospital to collaborate with teams at Mayo Clinic? Would that help your situation? What services do you need and/or what health situation are you facing right now?

Do you work with providers at a Pain Clinic?

I sort of chuckled at your age validation. I loved my mom and she was a beautiful woman. However, she aged like everyone else. Now I see more of her when I catch a reflection of myself today at 77.

When you mention that you have no support, what does that mean? What are your needs? Connect is a wonderful community with a mission of improving the quality of life of patients, caregivers, and families. We do need to know a bit more about the reason for your post.

Be safe and protected.
Chris

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