Hello Carrie @carrie4803 and welcome to Connect. Well, you have really spoke loud and clear for us all to hear and understand what you are going through. I'm so happy you found this site.

Unfortunately, neuropathy comes in all shapes and sizes, does not discrimate against sex or age and has a mind of its own for each individual. Mine began at age 46. My babies were just about grown unlike yours. ☹

I feel your pain and confusion and frustration. It's maddening for sure but, there is hope! Hope lies in the fact that neuropathy will not kill us, but make our lives more challenging.

As far as the challenges...they come both physically and mentally as you have experienced. I needed to learn alot about myself through the challenges and find some (even if extremely hard) good to take away.

Listen, we are here for you and will understand when no-one else may. We are are here for you to learn "tricks of the trade". We are here to comfort and support you on your darkest day.

My wish for you is that you have the skin biopsy to lay your mind to rest. Clarity helps the acceptance process. Please fight hard to be your own advocate. Do your research and learn your disease. Help yourself bc you know your body best.

When you have time away from the high demands of being a Mother, investigate the threads and links here. Others life experiences may offer so much more than the internet.

I'm here, we're here! It was brave of you to reach out to us... a great first step. Keep persevering Carrie, your sweet little one needs a strong mommy and you can do this.

All the best to you and please reach out anytime. Hope today is a pleasant one for you. 🌻

Be well -Rachel