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DiscussionIdeas for pain relief from Small Fiber Neuropathy (SFN)
Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)Comment receiving replies
Replies to "What did you find out from the 2nd biopsy, @burningfeetinphoenix ?"
@lisalucier - Hi Lisa, The results of the 2nd biopsy at the "certified" lab showed that I did not have Small Fiber Neuropathy. All of my nerve fiber densities (at three locations) were normal for my age. One was very slightly below normal but not much. These results were amazingly different than the first biopsy done this past summer which showed my epidermal nerves "severely" reduced in the two locations biopsied. For those inquiring about my second opinion, yes, my second opinion and second biopsy was ordered by a neurologist. In fact, it was ordered by Dr. Todd Levine who actually designed the protocol for the nerve biopsy test. Also, I never considered getting the "stem cell injections" from the Podiatrist. I had researched this treatment (actually with exesomes produced by stem cells). These exesomes do show promise but so far have not been fully researched and tested on humans. BTW Dr. Levine wrote the "bible" on SFN which is the book mentioned previously on this forum. I see him in February to review the results of the biopsy. The good news is the burning in my feet has subsided. However, I am still taking the Cymbalta and Phenytoin 10% compounded topical. I am not convinced nerves can grow back in a month although Dr. Levine seem to think this might be a possibility. I never found out what caused the supposed SFN and I'd still like to know. I'll keep searching as it may come back this summer when it is 120 deg out! Pam