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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)

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@burningfeetinphoenix

@lisalucier - @burningfeetinphoenix here. Hi Lisa. Thanks for your inquiry. Well, the burning feet miracuously went away! I am still on the 30 mg of Cymbalta and using the compounded Phenytoin 10% topical. I have seen Dr. Levine and he thinks the SFN "went away and the nerves grew back". However, I decided to go through with a 2nd punch biopsy as the previous neurologist I saw recommended this as the first biopsy was done at a non-certified lab. Dr. Levine suggested I try going off the meds to see if the SFN has indeed gone away. I am still skeptical as I found no reports of SFN just going away. However, Dr. Todd Levine is a an expert on SFN and has written a book on it as well as many scholarly articles. He has never indicated in any of those papers that SFN can go away unless the cause is found and treated. Normally it progresses over time...The results of the second biopsy will be ready this coming Monday, 12/16. I am waiting anxiously for those results, For now I can wear socks and my hiking and running shoes. I can sleep with socks on under the covers! I am back to trail running and hiking...I sure hope this lasts. Thanks for asking. Pam

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Replies to "@lisalucier - @burningfeetinphoenix here. Hi Lisa. Thanks for your inquiry. Well, the burning feet miracuously went..."

That's excellent! Isn't waiting for test results fun?

Jim

What did you find out from the 2nd biopsy, @burningfeetinphoenix ?