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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)
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@jimhd

@katec

I'm fortunate not having sfn hit me until I was 60 something. Having it as a teenager is pretty tough. How does it affect your son? Has he been able to find any helpful treatment?

I learned that I had pn 5 or 6 years after I realized that I had major depression. Adding chronic intractable pain to that has complicated my life. Pain and depression feed off each other. I've been blessed to have some excellent health professionals who have treated both the physical pain and the mental pain. I've also been encouraged by the members of this group.

Welcome to Connect. There's a lot of good support here, as well as a lot of good information. I hope you find some helpful ideas for treating your son's neuropathy.

Jim

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Replies to "@katec I'm fortunate not having sfn hit me until I was 60 something. Having it as..."
katec | @katec | Oct 25, 2019

Thanks so much for your kind words.

So far his SFN only affects his feet. He has severe pain on the bottom of both feet and it’s worse weight bearing but they hurt ALL the time. It’s been hard watching him go from a kid who never sat down and played soccer 5 days a week to someone who can’t even walk around the supermarket without being in tears from the pain....certainly not what we expected his teenage years to be like.

We have tried so many medications, therapies, supplements, elimination diets, footwear, etc and not a single thing has even eased his pain in the slightest. His pain is worse everyday. We are lucky to have a caring knowledgeable doctor, and even though she’s in Boston and we are in Texas she keeps close tabs on him, but she even admitted the other day she isn’t sure how to proceed with his treatment and will have to take with the “other experts” to get their opinions. So far his testing shows nothing out of the ordinary so he’s labeled as idiopathic so the direction of treatment is unknown.

I’m hoping some other people here have had some success finding some pain relief that we haven’t thought of yet! Thanks for any and all advice!

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