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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: 5 days ago | Replies (449)
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@katec

My 15 year old son, who has idiopathic SFN, tried LDN for about 5 months. He started at a very low dose and the max was 4.5mg. He unfortunately did not get any relief from LDN and discontinued it. It was made at a compounding pharmacy. Like any treatment, I’m sure someone will get good results from it and if you’re in our situation where nothing has brought him any kind of pain relief yet, it’s always worth trying if your doctor thinks it’s a good idea.

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Replies to "My 15 year old son, who has idiopathic SFN, tried LDN for about 5 months. He..."
Rachel, Volunteer Mentor | @rwinney | Oct 24, 2019

First off, I'm very sorry to hear your son was diagnosed with SFN. That is so unfair and my heart goes out to both him and you. I'm hoping he is unaffected by many of the possible side effects and that his youth makes him more resilient to handling it. Thanks for the advice. Be well.
Rachel

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Jim, Volunteer Mentor | @jimhd | Oct 24, 2019

@katec

I'm fortunate not having sfn hit me until I was 60 something. Having it as a teenager is pretty tough. How does it affect your son? Has he been able to find any helpful treatment?

I learned that I had pn 5 or 6 years after I realized that I had major depression. Adding chronic intractable pain to that has complicated my life. Pain and depression feed off each other. I've been blessed to have some excellent health professionals who have treated both the physical pain and the mental pain. I've also been encouraged by the members of this group.

Welcome to Connect. There's a lot of good support here, as well as a lot of good information. I hope you find some helpful ideas for treating your son's neuropathy.

Jim

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Rachel, Volunteer Mentor | @rwinney | Oct 26, 2019

Hello. Has your son received lidocaine infusions for pain? My Neurologist recommended I try and I have been receiving them weekly for over 4 months. Like any other treatment, it provides partial pain relief. Some days more than others. I have realized it's all about the percentages.
Rachel

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