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Ideas for pain relief from Small Fiber Neuropathy (SFN)
Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)Comment receiving replies
@terrydclaar - You have to find a compounding pharmacy in your area or on-line that can make it for you. If you do get a prescription for Phenytoin 10 percent. A 60 gram supply is good for 30 days...Phenytoin is the active ingredient It is brand name Dilantin I assumed micronized for compounding. You can go on-line and find the compounding instructions...my pharmacist had to track down some of the compounding ingredients so it about 10 days or so. This is not a common request. I apply 2 times/day. Pam
Replies to "@terrydclaar - You have to find a compounding pharmacy in your area or on-line that can..."
Thanks for your reply
I started seeing a pain pharmacist and she prescribed the Phenytoin Cream (after I asked about it - I wrote it down after seeing your post). We went to a local compounding pharmacy and the pharmacist said the Phenytoin active ingredient is super expensive (something like $1000 per gram, and he would need 30 grams of it. This does not seem right - especially since some of you have been able to get it. He recommended a Naltrexone cream instead. Do you have any websites where you get the Phenytoin at a reasonable cost?
Hi @terrydclaar, Research done in the Netherlands in 2018 with Phenytoin cream talks about Phenytoin or Phenytoin Sodium. Do you know which type you use. How much does your compounding pharmacy charge for a 60 gram supply? Would your pharmacy be willing - don't know if this is necessary - to share their compounding information with my pharmacy? So glad that it works for you.
Thanks,
Jim
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If phyntoin 10% cream is so effective why are these pharma companies not producing the cream commercially. Strange to say the least