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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)

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@burningfeetinphoenix

Thanks. I will post my results...So far I have had no bad side effects. I have SFPN and so far it appears to be idiopathic. Basically I am self-diagnosed. Came on all of a sudden in April 2019. It is spreading from my feet to my legs and hands. Although I take no oral pain medication, I do take Lamictal for Complex Partial Seizure Disorder. Lamictal is used for lots of things although it was, I believe, developed as an anti-epileptic drug many years ago. I had tried all the anti-seizure meds 25 years ago when I was diagnosed with CPSD and I had adverse reactions to these meds - all of them. I see a neurologist in October and hopefully I'll get some advice and confirmation of my self-diagnosed SFPN and possibly find the cause if there is one. I did get the biopsy and I think that proved my theory. I am also trying to get an appointment at the Mayo in Jacksonville. Although I live in Phoenix, Mayo here will not take me as a patient...Pam

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Replies to "Thanks. I will post my results...So far I have had no bad side effects. I have..."

Interesting. Do you know why they denied you?

I also was denied (by Mayo in MN). My belief is that I had already been diagnosed with SFPN, chronic migraine and corneal disease and they can't give me any more than my current Drs are able to give.