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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)

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@jager5210

Hi John,

Thanks again for your work and sharing on this board. I've gotten in most of the supplements required to start the regimen you said helped you. I also saw my old neurologist Friday and he said he would get me a referral to Mayo. My question to you is whether it's worth it? I can't keep up with all the postings on this board but I do not recall anyone saying that their visit to Mayo really helped them. Please correct me if I'm wrong.

I seriously suspect my neuropathy is related to some long-standing gut issue. I'm wondering if I would be better served trying to get a referral to Dr. Hymen's Functional Medicine Clinic at the Cleveland Clinic?

Recently, all my issues have really flared up. My feet are now both painful and numb to the extent that walking is awkward and painful. I'm concerned about losing mobility. With your numbness in your feet, is your mobility impaired? What is the eventual resolution of SFN? Do you know?

Thanks again,
Barry

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Replies to "Hi John, Thanks again for your work and sharing on this board. I've gotten in most..."

Hi Barry @jager5210, That is a really tough question for me. I can share my own experience with small fiber peripheral neuropathy and just the numbness. I think the supplements I'm taking have slowed or stopped the progression but it is really subjective on my part. I haven't had any additional testing done to prove it other than it's about the same as it was over three years ago when I was diagnosed with small fiber PN at Rochester Mayo. I only have numbness so when I asked about treatments my neurologist told me there were no medications or topicals that would help with the numbness which started my search and is how I found Connect. I'm 76 now and just had my right knee replaced in April and recovered quite well in part I believe in doing the pre-surgery and post surgery exercises. I still can't walk very far but it's more due to my lower back than my legs and I do watch my balance especially when I first stand up after sitting for awhile. I'm planning to try Myofascial Release Therapy as soon as I can find an accredited therapist close to my location or after I retire in December. I'm hoping it will help my lower back so that it's easier to walk.

You mention you suspect your neuropathy is related to a long-standing gut issue. May I ask why you believe that? I don't personally believe there is a cure or resolution for SFN other than treating the symptoms and improving the quality of ones life so if it were me and I thought it may be a gut issue that could be fixed I would definitely get a second opion from and health a major health facility like the Mayo Clinic, Cleveland Clinic or other major hospital.

I hope you find some answers that help you.

John

yes I have the same as you mobility is a problem I am heavy equipment operator getting in and out of the equipment is not good I have use a ladder in the past to help.