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Ideas for pain relief from Small Fiber Neuropathy (SFN)
Neuropathy | Last Active: Apr 26 7:21pm | Replies (449)Comment receiving replies
Hello @terryrose, Welcome to Connect. I have peripheral neuropathy. My diagnosis is idiopathic small fiber PN and I've had it for over 20 years but only bothered to get a diagnosis a few years ago. I only have numbness with my neuropathy. I'm sorry to hear about the pain with yours. There really is no cure for neuropathy but there are a lot of different treatments and therapies that can help relieve some of the worse symptoms and pain. I'm hoping other members will share their experience with you and you can learn what has helped them. I posted my story earlier on Connect with what I've found that has helped me here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
You might be find the following discussions helpful in your search for something to help with the sensitivity in your feet.
> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Are you able to share what current treatment you are using?
Replies to "Hello @terryrose, Welcome to Connect. I have peripheral neuropathy. My diagnosis is idiopathic small fiber PN..."
Boston Scientific makes a SCS (spine cord stimulate) that helps/
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Hi John,
Thanks again for your work and sharing on this board. I've gotten in most of the supplements required to start the regimen you said helped you. I also saw my old neurologist Friday and he said he would get me a referral to Mayo. My question to you is whether it's worth it? I can't keep up with all the postings on this board but I do not recall anyone saying that their visit to Mayo really helped them. Please correct me if I'm wrong.
I seriously suspect my neuropathy is related to some long-standing gut issue. I'm wondering if I would be better served trying to get a referral to Dr. Hymen's Functional Medicine Clinic at the Cleveland Clinic?
Recently, all my issues have really flared up. My feet are now both painful and numb to the extent that walking is awkward and painful. I'm concerned about losing mobility. With your numbness in your feet, is your mobility impaired? What is the eventual resolution of SFN? Do you know?
Thanks again,
Barry