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Ideas for pain relief from Small Fiber Neuropathy (SFN)

Neuropathy | Last Active: Jan 3 5:48pm | Replies (449)

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@helennicola

Thank you Somisgirl for sharing. I too was diagnosed almost 1 1/2 yrs. ago with ideopathic SFN, am 72 yrs. old and otherwise in excellent health. I exercise regularly, drink no alcohol, take R-Ala, magnesium citrate, Vit. C, D, omega 3 liquid and collagen peptides plus gabapentin 300 mg. at night. I have the burning/tingling and some numbness in my feet and hands and cramping/tingling in my legs mostly at night. It has only gotten slightly worse during that time. My neuro has suggested I try nortriptylene along with the gaba to help with anxiety/dep. side effects from the gaba but I am reluctant to risk more side effects. I think my game plan is working so far, I consider myself very fortunate and continue to keep my fingers crossed and pray for everyone experiencing pain that something better is coming soon.

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Replies to "Thank you Somisgirl for sharing. I too was diagnosed almost 1 1/2 yrs. ago with ideopathic..."

Good evening @helennicola. Thank you for sharing an update of your status at this time. It appears that you are committed to your program and it works for you.

When my depression got really bad and I was scary “suicidal”, my neurologist sat with me and told me that he wanted me to try nortriptylene to lift the hopeless grey cloud hanging over me. We have partnered on medication choices and so I listened.

The end result.....I started nortryptaline two years ago in concert with the gabapentin just as you mentioned. The impact was immediate and positive. I am a much happier SFN patient and a lot easier to be with. It is great not to spend so much time planning your own demise. Since I no longer spend much time dwelling on my issues, I have time for family and friends and a genuine interest in their lives. May you enjoy happiness and the causes of happiness. Chris