There are many clinical studies being done on this but whether or not they will help the ones of us who have lived with this for some time, I don't know but would hope. I just wanted to post something on this board to see if anyone has a success story with Mayo or Cleveland Clinic. It would be a long trip for me to go to either hospital; I would just like to know if there is a possibility. Maybe there will be a treatment for us someday. Good luck to you, as well.