My mother-in-Law did suffer with Sjogrens starting in her early 50's and always had symptoms. She passed away from lung cancer 19 years ago at age 72 (a chain smoker since age 18). I was wondering if now there is a new treatment which is helping your swollen glands? Do you still have dry mouth and eyes?
I am glad you are still pushing for a patch test, even if negative you have one more cause you can rule out. I only had exterior physical symptoms as a rash that would come and go on my hands with ACD. The symptoms that caused me unbelievable pain and misery were internal, my internal skin was inflamed. In fact when I went to an allergist for patch testing and looked at my chart he described me as having a "pleasant appearance, free of visible rash". At least he did the testing based on my description of my internal symptoms as other doctors looked at me and thought I was just fine. They couldn't feel what I was feeling. My point is even with the same disease ACD can be manifested in different ways.
I assume Alopecia has been ruled out.