← Return to Scalp and hair problems possibly from discoid lupus

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@gardeningjunkie

Interesting that you think Clobetasol caused hair loss. That would be interesting to research. It is a potent steroid and steroids only treat symptoms but don't solve the problem. I patch tested positive to 1 of the 5 classes of steroids and it overlaps into 2 other classes so steroid use is limited for me, but in the past the right steroid was helpful.Yet long term use of any steroid is not recommended, have you looked up all the side effects? When my scalp was itchy I lost volumes of hair but it grew back. Yet, all my life I shed hair seasonally but this loss was more severe.
The Tacrolimus is another one of the new immune suppressant drugs that isn't a steroid. It seems like a safer alternative and it is recommended for Atopic Eczema which I don't have. I have used Elidel, another immune suppressant for other forms of eczema and I think it helped some.
Eczema requires research on the patients part. You must become an expert on your type. I think I know as much if not more about my 3 forms of eczema than my dermatologists do. We have no choice but to study because eczema is not a precise disease. Each of us, even with the same type, have different responses to treatment. Trial and error. Even with allergic forms like ACD, no one will have your exact combination. I blindly followed my dermatologist for 10 years and she kept prescribing steroids and never even told me about patch testing. She told me I had eczema and I didn't even know there were types. If I was told I had cancer I would have asked what type. Her advice to stop getting my hand rash was to stop washing my hands and use steroids if symptomatic. Steroids and they only treat the symptoms and do not stop the cause. Yes it turned out most cleaning products affect me. So I wore protective gloves while cleaning only to learn I was allergic to the protective gloves!!! I was so ignorant and trusting of doctors in those days. Yet now I use my Grandma's Bar soap and safe protective gloves (I can use vinyl) and zero hand eczema and my grandson told me the other day after holding hands- he said Grandma your hands are so soft!
You may not have ACD, there are dozens of forms of eczema/dermatitis., but at least you can rule it out and search for other types. Each often has specific treatments. Go to dermnetnz.org the New Zealand Dermatology site. It's the best site out there I have found for those of us not in the medical field. Easy to understand and it helped me diagnosis one of my forms being treated incorrectly. Helpful photos of sufferers.

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Replies to "Interesting that you think Clobetasol caused hair loss. That would be interesting to research. It is..."

Wow, you have so much information. You are amazing. I really need to print off all the information you have sent me.
Thank you again.