I have been meaning to write something more and thank you for asking. Here is an update. I have managed to make an appointment with a rheumatologist on Oct 16, so there is a bit of a wait but that's OK. Meantime I am taking the Plaquenel because it takes 3 or 4 months to work. My original dermatologist has suggested that I try another medication also. [It's a long name and I will check it and let you know next time] She believes that I have Discoid Lupus plus a neurological problem where my nerves are not firing properly. I also have a slight itchiness all over me especially my arms.
I am also going to ask my Kaiser dermatologist for some allergy patch testing so that we can see what might be going on there plus I am seeing my new family Dr on Monday and will ask him for a thyroid test just to make sure there is nothing there. It all seems nothing but Drs right now. I do also use the Ketoconazole shampoo every couple of days as I feel that it soothes. It is anti fungal which also makes me wonder about yeast in my body. When I was younger I used to have a lot of yeast infections.
I also have Sjogrens Syndrome and irritable bowel and some suggestions of fibromyalgia. [Quite a mess really aren't I, although basically I feel healthy]
My original dermatologist spoke to me yesterday on the phone and we went over everything. She told me not to give up. Apparently there are also scalp specialists and it might be good for me to see one. However I have Kaiser insurance and I don't think they have one. It might be possible to have Kaiser agree to me seeing a scalp specialist at Mayo clinic, in which case I would go to Phoenix. We have family in Tucson. So there are a few things in the works. I am also using hydrocortisone lotion on my scalp instead of the clobetesol which was what the kaiser dermatologist injected me with. It obviously doesn't agree with me. I just hope it hasn't killed of the hair follicles.
I will stay in touch with what else happens. Thank you for showing an interest in me. It is a good feeling to have some support.
Jennifer