← Return to Scalp and hair problems possibly from discoid lupus

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@becsbuddy

@pollyann Welcome to Connect. We’re not doctors on this site but we all try to share information and support. What you have mentioned in your treatment of discoid lupus is what is suggested by the lupus foundation. Plus covering up from the sun is so important! I have a different type of autoimmune disease and also need to stay out of the sun because of my medications. Have you seen a rheumatologist? They seem to be the ones with the most knowledge of autoimmune diseases. Did you have a biopsy to confirm the diagnosis? Please stay in touch, someone on the site may have direct experience.
https://www.ncbi.nlm.nih.gov/books/NBK493145/ Check out this website

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Replies to "@pollyann Welcome to Connect. We’re not doctors on this site but we all try to share..."

I live in Hawaii so of course there is plenty of strong sun but I always wear a hat. I have also had a couple of inconclusive biopsies. I wonder whether I should have another one while it is so bad. Also, I haven't seen a rheumatologist for a few years and never about this problem. I have seen him in the past for Sjogrens syndrome and fibromyalgia. Thanks for your ideas.